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Clinical perspectives on the identification of neurodevelopmental conditions in children and changes in referral
Barry Coughlan1, Matt Woolgar2, Alissa Mann3
1Department of Public Health and Primary Care, University of Cambridge, Cambridge, UK bc471@medschl.cam.ac.uk.
Insights
General practitioners (GPs) identify autism and ADHD using diverse information, but referral pathway changes impact their role. Further evaluation of these new pathways is needed.
Area of Science:
- Neurodevelopmental disorders
- General practice
- Healthcare systems
Background:
- General practitioners (GPs) play a role in identifying neurodevelopmental conditions like autism spectrum disorder (autism) and attention deficit hyperactivity disorder (ADHD).
- Recent changes in referral pathways have shifted the identification and referral process for these conditions, involving educational professionals and health visitors instead of GPs.
Purpose of the Study:
- To explore how GPs identify autism and ADHD in their practice.
- To understand GP perspectives on recent changes to neurodevelopmental referral pathways.
- To investigate Child and Adolescent Mental Health Services (CAMHS) specialists' views on the GP's role in identification.
Main Methods:
- Semistructured interviews were conducted with 8 GPs, 7 local CAMHS specialists, and 10 national CAMHS professionals.
- Interviews took place between January and May 2019.
- Thematic analysis using a framework approach was employed to analyze the collected data.
Main Results:
- GPs utilize a range of information, including behavioral markers, parental reports, family history, and expert/lay resources, for identification.
- GP opinions on the altered referral pathways were divided, with some finding them beneficial and others problematic.
- CAMHS specialists suggested that GPs need enhanced neurodevelopmental training and more consultation time.
Conclusions:
- This study confirms that GPs employ multiple information sources for autism and ADHD referral decisions.
- The reconfiguration of neurodevelopmental referral pathways, diminishing the GP's role, requires urgent evaluation.
Objective:
Previous work has raised questions about the role of general practitioners (GPs) in the identification of neurodevelopmental conditions such as autism spectrum disorders (autism) and attention deficit hyperactivity disorders (ADHD). This study aimed to explore how GPs identify these conditions in practice and their perspectives on recent changes to local referral pathways that mean referrals to the neurodevelopmental team come through educational professionals and health visitors, rather than GPs. This study also aimed to explore Child and Adolescent Mental Health Services (CAMHS) specialist's perspectives on the role of GPs.
Setting:
GP practices, local neurodevelopmental services and specialist CAMHS services in the UK.
Participants:
semistructured interviews were conducted with GPs (n=8), specialists in local CAMHS (n=7), and professionals at national CAMHS services around the country (n=10). Interviews were conducted between January and May 2019. A framework approach informed by thematic analysis was used to analyse the data.
Results:
GPs drew on various forms of tacit and explicit information including behavioural markers, parental report, prior knowledge of the family, expert and lay resources. Opinions varied between GPs regarding changes to the referral pathway, with some accepting the changes and others describing it as a 'disaster'. CAMHS specialists tended to feel that GPs required more neurodevelopmental training and time to conduct consultations.
Conclusion:
This study adds to the literature showing that GPs use an array of information sources when making referral decisions for autism and ADHD. Further work is urgently required to evaluate the impact of reconfiguring neurodevelopmental referral pathways such that GPs have a diminished role in identification.
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