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Management Landscape of Pediatric Hidradenitis Suppurativa
Justine R Seivright1, Erin Collier1, Tristan Grogan2
1David Geffen School of Medicine, University of California, Los Angeles, California, USA.
Insights
Pediatric hidradenitis suppurativa (HS) patients often see primary care first, facing a 2-year diagnostic delay. Dermatologists are key providers, but HS awareness among pediatricians needs improvement for earlier diagnosis and treatment.
Area of Science:
- Dermatology
- Pediatrics
- Health Services Research
Background:
- Pediatric hidradenitis suppurativa (HS) is understudied.
- Limited literature exists on the provider landscape for pediatric HS.
- Understanding healthcare utilization is crucial for improving patient outcomes.
Purpose of the Study:
- To characterize healthcare utilization in pediatric HS patients.
- To identify the primary care providers for pediatric HS.
- To analyze diagnostic delays and treatment patterns.
Main Methods:
- Retrospective chart review of patients diagnosed with HS before age 18.
- Utilized ICD-9/10 codes for HS identification.
- Collected data on demographics and healthcare providers.
Main Results:
- Half of pediatric HS patients initially presented to primary care.
- A mean diagnostic delay of 2 years was observed.
- Dermatologists were the primary providers, managing 63% of treatments/procedures, with low HS specialty clinic utilization (11%).
Conclusions:
- Dermatologists are pivotal in managing pediatric HS.
- Increased HS awareness among primary care providers, including pediatricians, is essential for early diagnosis and treatment initiation.
Introduction:
Pediatric hidradenitis suppurativa (HS) is an understudied condition, and the literature describing the provider landscape for this disease is limited. We aim to characterize healthcare utilization in a cohort of pediatric HS patients at an academic institution.
Methods:
Patients diagnosed with HS before age 18 were identified via retrospective chart review using ICD-9/10 codes for HS. Data on demographics and HS providers were collected.
Results:
We found that half of the pediatric HS patients first presented to primary care with their HS symptoms. There was a mean delay in diagnosis of 2 years. Dermatologists and pediatricians were the principal HS care providers, and dermatologists most frequently prescribed treatment or procedures (63%). We also found a low rate of utilization of the HS specialty clinic (11%). Females, patients with more severe disease, and patients with earlier age of onset were more likely to be seen by a dermatologist.
Conclusions:
Dermatologists play a pivotal role in pediatric HS management as principal care providers for patients. Increasing HS awareness among primary care providers, including pediatricians, is critical for early diagnosis and initiation of treatment.
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