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Publicly Available, Interactive Web-Based Tools to Support Advance Care Planning: Systematic Review
Charlèss Dupont1, Tinne Smets1,2, Fanny Monnet1,2
1End-of-Life Care Research Group, Vrije Universiteit Brussel & Ghent University, Brussels, Belgium.
This review evaluated 30 web-based advance care planning (ACP) tools, finding varied content quality. Future tools should involve users and cite scientific evidence for better support.
Area of Science:
- Digital Health
- Health Informatics
- Patient Empowerment
Background:
- Growing availability of interactive web-based advance care planning (ACP) support tools.
- Many tools are not documented in peer-reviewed literature, necessitating a review of their characteristics and quality.
Purpose of the Study:
- Systematically review web-based ACP tools.
- Describe tool characteristics, readability, and content quality.
- Investigate the evaluation methods of these tools.
Main Methods:
- Systematic search of gray literature databases, app stores, and Google.
- Inclusion criteria: web-based, interactive, accessible, English/Dutch.
- Content quality assessed using the Quality Evaluation Scoring Tool (0-28 scale).
Main Results:
- 30 tools met criteria (websites, portals, apps).
- 80% had a clear aim (decision support, documentation, reflection).
- Quality scores varied (11-28); lower scores often lacked source references.
Conclusions:
- Web-based ACP tools vary significantly in content quality.
- Future development should prioritize user involvement and evidence-based content.
- Enhancing the scientific rigor of ACP tools is crucial.
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