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Behavioral Health Professionals' Perceptions on Patient-Controlled Granular Information Sharing (Part 2): Focus Group
Julia Ivanova1, Tianyu Tang2, Nassim Idouraine3
1School of Human Evolution and Social Change, Arizona State University, Tempe, AZ, United States.
JMIR Mental Health
|April 20, 2022
Summary
Behavioral health professionals initially misunderstood patient-controlled granular information sharing (PC-GIS). After education, they understood PC-GIS but found patient rationale unclear, recommending improved patient engagement strategies.
Area of Science:
- Health Informatics
- Behavioral Health
- Patient Data Control
Background:
- Granular information sharing allows patients to control access to health data.
- Previous studies focused on patient perspectives; behavioral health professional views on patient-controlled granular information sharing (PC-GIS) are largely unknown.
Purpose of the Study:
- Assess behavioral health professionals' understanding and opinions of PC-GIS.
- Evaluate their accuracy in assessing redacted medical information.
- Examine reactions to patient rationale for data categorization and sharing.
- Gather recommendations for improving PC-GIS.
Main Methods:
- Conducted four 2-hour focus groups with 28 behavioral health professionals.
- Utilized pre- and postsurveys.
- Applied thematic analysis to focus group transcripts.
Main Results:
- Over half of professionals were initially unaware of granular information sharing.
- All professionals understood PC-GIS after explanation.
- 81% accurately identified redacted medical information.
- 66% found patient rationale for data choices unclear.
- Recommended patient education and engagement strategies.
Conclusions:
- Behavioral health professionals' insights are crucial for developing effective PC-GIS.
- Findings will guide the creation of an electronic consent tool for granular health data sharing.
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