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Updated: Sep 25, 2025

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Biobank for Translational Medicine: Standard Operating Procedures for Optimal Sample Management
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Digital data donations: A quest for best practices
Jakob Ohme1,2, Theo Araujo2
1Weizenbaum Institute for the Networked Society, Freie Universität Berlin, Berlin, Germany.
Patterns (New York, N.Y.)
|April 25, 2022
Abstract:
This preview article discusses PORT-a data donation software newly developed by Boeschoten et al.-toward the background of three core data donation principles: privacy protection, meaningful data extraction, and securing user agency.
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