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Myeloma patients' experiences of a supervised physical activity programme: a qualitative study
Joanne Land1,2, Julia Hackett3, Govundeep Sidhu1
1Department of Behavioural Science and Health, University College London, 1-19 Torrington Place, London, WC1E 7HB, UK.
Summary
Multiple myeloma patients found supervised exercise beneficial, improving physical and mental health. Key elements for success included tailored programs, physiotherapist guidance, and social support for long-term adherence.
Area of Science:
- Oncology
- Exercise Science
- Patient Experience Research
Background:
- Multiple myeloma (MM) is a cancer impacting patient wellbeing and physical function.
- Supervised exercise programs show promise in managing cancer treatment side effects.
- Understanding patient perspectives is crucial for optimizing exercise interventions in survivorship care.
Purpose of the Study:
- To explore the experiences of multiple myeloma patients participating in the MASCOT supervised exercise program.
- To identify facilitators and barriers to exercise participation and adherence in MM survivors.
- To inform the design of future exercise interventions for cancer survivors.
Main Methods:
- Purposive sampling recruited stable multiple myeloma patients from the MASCOT trial.
- Semi-structured, face-to-face interviews were conducted.
- Verbatim transcripts were analyzed using thematic analysis.
Main Results:
- Key participation drivers included altruism and a desire to improve post-treatment care.
- Barriers included fear of harm and lack of professional guidance; physiotherapy supervision and tailored exercises fostered confidence and broke down misconceptions.
- Social support enhanced motivation, while participants identified strategies for long-term exercise maintenance.
Conclusions:
- The post-treatment exercise intervention was a positive experience, enhancing physical and psychological wellbeing for MM patients.
- Tailored exercises, specialist physiotherapy, and ongoing support were vital for intervention success.
- Exercise support, particularly with physiotherapist supervision, should be integrated into MM survivorship care to improve quality of life, self-efficacy, and mental wellbeing.
