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Ensuring Equity and Inclusion in Virtual Care Best Practices for Diverse Populations of Youth with Chronic Pain
Kathryn A Birnie1, Tieghan Killackey2, Gillian Backlin3
1An assistant professor in the Department of Anesthesiology, Perioperative and Pain Medicine at the University of Calgary; the Alberta Children's Hospital Research Institute; and the Hotchkiss Brain Institute. She is also the associate scientific director of SKIP. Kathryn is a clinical psychologist and lead for the Partnering For Pain patient-oriented research program in Calgary, AB, and the traditional territories of the people of the Treaty 7 Region in Southern Alberta and Métis Nation of Alberta, Region 3. She can be contacted at kathryn.birnie@ucalgary.ca.
Abstract:
Poor access to care is a top patient-oriented research priority for youth with chronic pain in Canada, and the COVID-19 pandemic has exacerbated these concerns. Our patient-oriented project team engaged with marginalized and racialized youth with chronic pain (Black youth with sickle cell disease, Indigenous youth and youth with complex medical needs) and their families to ensure that best practice recommendations for virtual care are inclusive and equitable. Input provided through virtual round-table discussions improved recommendations for leveraging, implementing and selecting best platforms for virtual care for youth with chronic pain and identified new gaps for future research, practice and policy change.
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