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Evaluation of Experiences and Impact of Patient Engagement on e-Health Research: A Qualitative Study
Rachel Y Pan1, Kendra Zhang2, Arani Sivakumar3
1A medical student at the Temerty Faculty of Medicine, University of Toronto in Toronto, ON, with research interests in the areas of management of complex chronic medical conditions, mental health and medical education.
Background:
Health technology has increasingly moved toward adopting a "user-centred design" approach to include the user/patient throughout the innovation and design process; however, few studies have evaluated the patient's experience of such an engagement.
Objective:
The aim of this study was to explore the role of patient engagement (PE) within e-health innovation research.
Method:
Using qualitative descriptive methodology, semi-structured interviews were conducted with eight participants (patient partners and research/development team members).
Findings:
Key themes were centred on enablers of, challenges to and methods of improving PE.
Conclusion:
PE must be prioritized from study conception, explicitly programmed into study conduct and valued by integrating patient partner input.
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