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Advancing Patient-Partnered Research: Empowerment, Innovation and Evolution
Annette McKinnon1, Maureen Smith2
1A member of OSSU's Patient Partner Working Group. She developed an interest in patient-partnered research as part of her journey with rheumatoid arthritis. She can be contacted by e-mail at a.mckinnon@sympatico.ca.
Healthcare Quarterly (Toronto, Ont.)
|April 25, 2022
Summary
Patient partners found that research awards fostered successful patient-partnered projects, advancing engagement strategies. These initiatives demonstrate the significant benefits of involving patients in research.
Area of Science:
- Health Services Research
- Patient Engagement in Research
Background:
- The Ontario SPOR SUPPORT Unit (OSSU) Engaging Multi-stakeholders for Patient Oriented-research (EMPORe) Wider Effects and Reach Awards were established to support patient-partnered research.
- Patient engagement is increasingly recognized as crucial for impactful health research.
Purpose of the Study:
- To evaluate the impact of the EMPORe Awards on patient-partnered research projects from the perspective of patient partners.
- To explore the evolution of patient partnerships and engagement strategies facilitated by these awards.
Main Methods:
- Qualitative analysis of experiences from patient partners involved in 15 research projects funded by the EMPORe Awards.
- Case study approach profiling successful patient-partnered research initiatives.
Main Results:
- The awards successfully facilitated numerous patient-partnered research projects.
- Patient partners reported a significant evolution in their roles and the overall engagement strategies within research.
Conclusions:
- Patient-partnered research, supported by targeted funding like the EMPORe Awards, yields substantial benefits.
- These awards have demonstrably advanced the practice and impact of patient engagement in health research.
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