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Strategies to Engage Systematically Marginalized Youth and Their Families in Research Using High-Tech Methods.

Heather K Hardin1, Anna E Bender, Cheryl M Killion

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Summary
This summary is machine-generated.

Engaging marginalized youth and families in high-tech research requires addressing fears and building understanding. Guidelines were developed to improve recruitment and participation in technology-focused studies.

Keywords:
familyfunctional magnetic resonance imagingheart rate variabilitymarginalized populationsresearch subject recruitmentyouth

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Area of Science:

  • Community-based participatory research
  • Health disparities research
  • Technology and health

Background:

  • Historically marginalized communities face unique challenges in participating in research.
  • High-tech research methods present specific barriers and facilitators for engagement.
  • Community-based participatory research (CBPR) principles are crucial for equitable research practices.

Purpose of the Study:

  • To identify facilitators and barriers for engaging youth and families from marginalized communities in high-tech research.
  • To develop evidence-based guidelines for recruiting and engaging diverse populations in technology-focused studies.
  • To adapt CBPR principles for effective implementation in high-tech research settings.

Main Methods:

  • Conducted 4 focus groups with 13 youth and 12 parents from a historically marginalized community.
  • Utilized codebook thematic analysis to identify key themes from participant discussions.
  • Adapted community-based participatory research principles throughout the study design and execution.

Main Results:

  • Identified 5 facilitator themes: skill development, health assurance, enhanced understanding, safety promotion, altruism, and youth-driven interest.
  • Identified 4 barrier themes: anxiety, fear, skepticism, confusion, and unfamiliarity with the research experience.
  • Youth and parent input directly informed the creation of practical engagement guidelines.

Conclusions:

  • Effective engagement strategies must address community-specific concerns and leverage intrinsic motivations.
  • Guidelines are proposed to enhance the recruitment and retention of marginalized youth and families in high-tech research.
  • This study highlights the importance of culturally sensitive and participatory approaches in advancing health equity through technology research.