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Self-Reported Transition Readiness of Adolescent Patients with Rheumatic Disease: Do the Parents Agree?
Christina Ma1, Molly Dushnicky2, Habeba Talaat3
1Department of Medicine, McMaster University, Hamilton, Ontario, Canada.
The Journal of Pediatrics
|May 13, 2022
Summary
Adolescents with rheumatic disease and their parents generally agree on transition readiness. However, specific areas showed some disagreement, highlighting a need for targeted support during this critical phase.
Area of Science:
- Pediatric Rheumatology
- Adolescent Medicine
- Healthcare Transition
Background:
- Effective transition from pediatric to adult healthcare is crucial for adolescents with rheumatic diseases.
- Assessing patient and parent perspectives on readiness is vital for successful healthcare transitions.
Observation:
- This study compared transition readiness assessment scores between adolescents with rheumatic disease and their parents.
- The agreement level between adolescent and parent scores was analyzed.
Findings:
- Adolescents and parents demonstrated general agreement regarding the overall level of transition readiness.
- Discrepancies in perceived readiness were noted in specific domains, indicating potential areas for intervention.
Implications:
- Findings suggest that while general alignment exists, tailored discussions are needed to address domain-specific disagreements.
- Healthcare providers should facilitate open communication between adolescents and parents to optimize the transition process.
- Understanding these differing perspectives can inform the development of more effective transition support programs for youth with rheumatic conditions.
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