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Strengthening Community Participation by People With Disabilities in Community-Based Group Homes Through Innovative
Marji Erickson Warfield1, Laura Lorenz2, Hebatallah Naim Ali2
1Center for Youth and Communities, Lurie Institute on Disability Policy, Heller School for Social Policy and Management, Brandeis University, Waltham, MA, United States.
Community-based care for individuals with disabilities is shifting. This study shows that improving relationships between care staff, residents, and the community can foster greater participation in community life.
Area of Science:
- Health Services Research
- Disability Studies
- Community Psychology
Background:
- A paradigm shift towards community-based care is occurring, impacting individuals with disabilities in residential settings.
- Ensuring meaningful community participation for residents with disabilities is a key policy objective.
- Despite government initiatives, progress in community integration for residents with disabilities remains limited.
Purpose of the Study:
- To investigate how resources and relationships among care providers, residents, families, and community members can enhance community participation.
- To assess and improve the quality of relationships between direct care staff, managers, residents, family members, and the community.
- To leverage relational coordination theory and value creation models in a residential care setting.
Main Methods:
- A community case study utilizing an action research intervention in a residential group home for adults with acquired brain injuries.
- A pre-test/post-test design with quantitative electronic surveys assessing relational coordination (RC) among staff.
- Qualitative data collection through focus groups, change team meetings, and key informant interviews.
Main Results:
- Direct care staff identified weak ties with the community as a concern.
- An intervention, a community-wide open house, was implemented by staff.
- Post-intervention, staff demonstrated increased (qualitatively significant) relational coordination with the community, fostering real connections.
Conclusions:
- Engaging direct care staff in improving relational coordination with community members shows promise.
- Building essential relationships can facilitate greater community participation for residents with disabilities.
- This pilot study provides tentative evidence for staff-led interventions to enhance community integration.
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