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Gout management and outcomes during established COVID-19 pandemic in 2020-2021: a cross-sectional Internet survey
Jasvinder A Singh1, N Lawrence Edwards2
1Department of Medicine, School of Medicine, University of Alabama, Faculty Office Tower 805B, 510 20th Street S, Birmingham, AL 35294, USA.
Insights
Gout patients faced challenges managing their condition during the COVID-19 pandemic, including healthcare access issues and psychological distress. Moderate-severe psychological distress significantly worsened difficulties in healthcare access and overall gout management.
Area of Science:
- Rheumatology and Immunology
- Public Health and Epidemiology
- Psychological Medicine
Background:
- The COVID-19 pandemic significantly disrupted healthcare systems globally.
- Gout management requires consistent medical care and medication adherence, both potentially impacted by pandemic-related challenges.
Purpose of the Study:
- To evaluate the management of gout during the established COVID-19 pandemic.
- To assess medication use, healthcare utilization, quality of life, and psychological factors in gout patients during the pandemic.
Main Methods:
- A cross-sectional internet survey was conducted among individuals with physician-diagnosed, self-reported gout.
- Data collected included medication use (urate-lowering therapy - ULT), healthcare access, gout-specific health-related quality of life (HRQOL), psychological distress (PHQ-4), resilience, illness perception, and health literacy.
Main Results:
- Among 130 respondents, 59% were prescribed ULT, and 80% had adequate health literacy.
- A third reported increased difficulty managing gout post-September 2020, with evident HRQOL deficits.
- Moderate-severe psychological distress (22% of respondents) was significantly associated with increased difficulties in accessing healthcare, managing gout flares, avoiding complications, and performing daily/work activities.
Conclusions:
- Gout patients experienced healthcare gaps, suboptimal ULT prescription rates, elevated psychological distress, and reduced HRQOL during the pandemic.
- Psychological distress emerged as a key factor exacerbating difficulties in healthcare access and gout management.
- Targeted interventions are crucial to address these multifaceted challenges in gout patient care during public health crises.
Objective:
To assess the management of gout in established COVID-19 pandemic.
Methods:
We assessed medication use, health care utilization, gout-specific health-related quality of life (HRQOL), psychological distress using Patient Health Questionnaire-4 (PHQ-4), resilience, illness perception, and health literacy in people with physician-diagnosed self-reported gout in established COVID-19 pandemic in a cross-sectional Internet survey.
Results:
Among the 130 survey respondents with gout, the mean age was 62.8 years, 65% were male, 83% were White, 59% were prescribed urate-lowering therapy (ULT), and health literacy was adequate in 80%. A third of survey respondents reported more difficulty with their gout management since September 2020. Gout-specific HRQOL deficits were evident. Moderate-severe psychological distress was seen in 22%, and resilience score was 6.5 [standard deviation (SD), 1.9; range, 0-8]. Adjusted for age and sex, compared with no/mild psychological distress, moderate-severe psychological distress was associated with significantly higher odds ratio (OR; 95% confidence interval) of more difficulty with (1) getting health care for gout in clinic, 3.7 (1.0, 13.2); emergency room/urgent care, 8.1 (1.4, 45.0); and in the hospital, 9.8 (1.6, 59.6); (2) getting gout flares treated, 6.6 (1.6, 26.8); (3) avoiding gout complications, 4.5 (1.2, 16.7); and (4) daily activities at home, 4.2 (1.3, 14.1), and performing work, 4.1 (1.2, 13.6).
Conclusion:
Respondents with gout reported health care gaps, low rates of ULT prescription, high psychological distress, and HRQOL deficits during established COVID-19 pandemic. Moderate-severe psychological distress was associated with difficulties in health care access and gout management. Interventions to address these challenges in gout management are needed.
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