[Parenthood challenged by cystic fibrosis. Experience of affected parents]
1Centre de ressources et de compétences de la mucoviscidose (C.R.C.M.) et centre de transplantation pulmonaire, 92150 Suresnes, France.
Introduction:
Medical progress affords patients with cystic fibrosis (CF) the opportunity to become parents.
Objective:
To assess the psychological issues of parenthood in persons with cystic fibrosis.
Material And Methods:
Semi-structured interviews on parenthood, conducted by a psychologist with CF parents treated at the Cystic Fibrosis Center and the Transplantation Center of Foch hospital (Suresnes, France).
Results:
Twenty-one (21) fathers and 22 mothers participated ; 84 % had become parents through pregnancy, 14% via adoption and one woman by means of surrogacy; 73% of the women and 67% of the men had done so prior to lung transplantation, while 25% had achieved parenthood without or against medical advice. As parents, they suffered from a lack of familial and medical support for their parental projects and a lack of recognition of their reproductive difficulties.
Conclusion:
While the desire for a child may be initially repressed by potentially life-threatening risks, a loving couple with a satisfying sexual life may in many instances surmount the repression and express the desire, which is not only the desire for a potentially life-bearing body, but also the desire to start a family.
More Related Videos
06:57The WinCF Model - An Inexpensive and Tractable Microcosm of a Mucus Plugged Bronchiole to Study the Microbiology of Lung Infections
Published on: May 8, 2017
08:00Generation of Human Nasal Epithelial Cell Spheroids for Individualized Cystic Fibrosis Transmembrane Conductance Regulator Study
Published on: April 11, 2018
Related Concept Videos
Cystic Fibrosis: Pathogenesis
CF is primarily caused by a genetic mutation in a chromosome 7 gene coding for the cystic fibrosis transmembrane conductance regulator (CFTR) protein. The most common gene mutation leading to CF is the ΔF508 mutation,...
Cystic Fibrosis: Management
Sinus disease and chronic...
Parental Care
Relationship with Parents: Attachment
Chronic Obstructive Pulmonary Disease-V: Nursing Management
Assessment
Chronic Pancreatitis II: Collaborative Care
Assessment:
