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Involving Individuals with Developmental Language Disorder and Their Parents/Carers in Research Priority Setting
Published on: June 6, 2020
Two generations thrive: Bidirectional collaboration among researchers, practitioners, and parents to promote
Briana Woods-Jaeger1, Lauren Kleven2, Chris Sexton3
1Department of Behavioral, Social, and Health Education Sciences, Rollins School of Public Health, Emory University.
Objective:
Prolonged exposure to adverse childhood experiences (ACEs) in the absence of protective relationships and systems contributes to toxic stress and can lead to numerous psychological and physical health consequences. Disproportionate exposure to ACEs and lack of appropriate responses stemming from systemic racism contributes to racial inequities. Culturally responsive practices and policies focused on early childhood are critical to prevent toxic stress and subsequent health inequities. This paper describes a collaboration among researchers, practitioners, and parents of color with lived experiences of ACEs entitled: Two Generations Thrive, which aims to prevent the intergenerational transmission of ACEs through improving practices and policies within the health care, education, and child welfare systems.
Method:
Community-based Participatory Research (CBPR) and cultural humility provided a framework and key principles for our collaboration, with an emphasis on critical reflection, mitigating power imbalances, and institutional accountability. Qualitative and quantitative methods were used to evaluate outcomes. We describe our process of building an infrastructure for bidirectional collaboration and key lessons learned to offer a roadmap for researchers, clinicians, and advocates who seek to partner in preventing ACEs and subsequent health inequities.
Results:
Key lessons learned include: the importance of building and maintaining trust, consistently working to mitigate power imbalances, and the power of bidirectional collaboration to maximize the benefit of research and action for communities traditionally marginalized in research and practice.
Conclusions:
Cultural humility and CBPR provide a strong foundation to promote bidirectional collaboration among researchers, practitioners, and parents with lived experience of ACEs. (PsycInfo Database Record (c) 2023 APA, all rights reserved).
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