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Updated: Sep 22, 2025

Implantation of Total Artificial Heart in Congenital Heart Disease
Published on: July 18, 2014
Patients with Congestive Cardiac Failure Referred to Specialist Palliative Care
1421962Marymount University Hospital & Hospice, Cork, Ireland.
Insights
Patients with congestive cardiac failure (CCF) have significant symptom burdens. Early referral to specialist palliative care (SPC) is crucial, as many patients are referred late or do not require SPC services.
Area of Science:
- Cardiology
- Palliative Medicine
- Geriatrics
Background:
- Congestive cardiac failure (CCF) is a chronic condition with a high symptom burden.
- Limited data exists on the palliative care needs of CCF patients.
Purpose of the Study:
- To characterize patients with congestive cardiac failure referred to specialist palliative care (SPC) in Ireland.
- To understand referral patterns and needs within this population.
Main Methods:
- Retrospective chart review of 57 CCF patients over two years.
- Data collected on demographics, referral sources, symptoms, and outcomes.
Main Results:
- The commonest symptom was dyspnoea; mean age was 81.
- Referrals came from GPs (42%), Cardiologists (39%), and others.
- Over 50% of deceased patients were referred within one month of death; 25% were discharged.
Conclusions:
- CCF patients experience significant symptom burden requiring palliative care.
- Late referrals and inappropriate referrals were common, indicating a need for better education on SPC indications.
- Early and appropriate referral to SPC can optimize care for CCF patients.
Background:
Congestive cardiac failure is a chronic, progressive condition with a significant symptom burden. There is limited data available regarding the palliative care requirements of the heart failure population.
Aims:
To characterise patients with a primary diagnosis of congestive cardiac failure referred to a specialist palliative care (SPC) service in Ireland.
Methods:
A retrospective chart review of patients with congestive cardiac failure admitted to the specialist palliative care unit or reviewed by the community palliative care team over 2 years was carried out, utilising a data collection template.
Results:
57 patient charts were included. 54% (n = 31) were female. Mean age was 81 [60 - 97] years. GP's referred 42% (n = 24), Cardiologists 39% (n = 22) and other hospital consultants 19% (n = 11). The commonest symptom reported was dyspnoea (n = 47). Time from referral to death ranged from less than one month (n =22) to greater than one year (n = 3). 14 patients were discharged from the service due to lack of SPC needs. Place of death was distributed between home, hospice, nursing home and acute hospital.
Conclusions:
Patients with congestive cardiac failure experience high symptom burden. More than 50% of patients that died while receiving SPC input had been referred less than 1 month prior, while almost a quarter of all referrals resulted in patient discharge. This highlights the importance of further education regarding indication for specialist palliative care referral and the benefits of early referral in this patient cohort when appropriate.
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