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The COVID-19 Pandemic: Early Ripple Effects in Pediatric Palliative Care
Linda Marisol Bustamante1, Regina Okhuysen-Cawley2, Julia Downing3
1Unidad Nacional de Oncología Pediátrica, Guatemala 01011, Guatemala.
Insights
The COVID-19 pandemic impacted pediatric palliative care (PC) delivery. This article observes the early effects of the pandemic on providing this essential care to children.
Area of Science:
- Pediatric Palliative Care
- Global Health
- Pandemic Response
Background:
- Palliative care (PC) offers comprehensive, holistic support for life-limiting conditions.
- PC is an integral part of global healthcare, yet its funding and acceptance vary.
- Many PC services rely on professionals providing care alongside other duties.
Purpose of the Study:
- To highlight early observations of the COVID-19 pandemic's effects on pediatric palliative care.
- To document the initial impact on the provision of PC for children during the pandemic.
Main Methods:
- Observational analysis of early pandemic effects.
- Qualitative review of palliative care provision changes.
Main Results:
- The COVID-19 pandemic presented unique challenges to pediatric palliative care.
- Early observations indicate variability in how PC services adapted.
Conclusions:
- Understanding the pandemic's initial impact is crucial for future service adaptation.
- Further research is needed to fully assess long-term effects on pediatric PC.
Abstract:
Palliative care, which aims to provide comprehensive, interdisciplinary, holistic care to children, adolescents and adults with life-threatening, and ultimately life-limiting conditions, is a discipline that has emerged as an integral component of healthcare systems throughout the world. Although the value of life-affirming palliative care (PC) has been shown across many domains, funding and acceptance of palliative care teams have been variable: some hospital systems have free-standing, dedicated interdisciplinary teams while, in many instances, palliative care services are provided "pro bono" by individuals with a special interest in the discipline, who provide PC in addition to other responsibilities. In this article, we hope to highlight some of the observations on the early effects of the COVID-19 pandemic on the provision of PC in children.
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