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Parenting a child with a chronic illness during a pandemic

Cara Gallegos1, Michael D Aldridge2, Kelley Connor1

  • 1School of Nursing, Boise State University, United States of America.

Journal of Pediatric Nursing
|May 31, 2022
PubMed

Insights

Parents of children with chronic health conditions experienced increased stress during the COVID-19 pandemic, particularly due to isolation and resource limitations. This highlights the need for mental health support for these families.

Area of Science:

  • Pediatric Health
  • Mental Health
  • Public Health

Background:

  • Approximately 20% of US children have chronic health conditions.
  • Parents of children with special healthcare needs (CSHCN) face significant caregiving stress.
  • The COVID-19 pandemic presented unique challenges for families of CSHCN.

Purpose of the Study:

  • To describe the stress levels of parents caring for a child with a chronic illness during the COVID-19 pandemic.
  • To identify factors contributing to parental stress during this period.

Main Methods:

  • A descriptive study involving 34 parents of CSHCN.
  • Utilized the Pediatric Inventory for Parents (PIP) for stress assessment.
  • Included specific questions about pandemic-related caregiving challenges.

Main Results:

  • Pediatric Inventory for Parents scores were higher than in previous studies.
  • Parental stress correlated positively with child's age and diagnosis duration.
  • Nearly all parents reported increased stress due to COVID-19, citing isolation, resource scarcity, and concern for other children's mental health.

Conclusions:

  • The COVID-19 pandemic likely intensified existing stress for parents of CSHCN.
  • The pandemic underscored the vulnerability and high stress levels experienced by these parents.
  • Pediatric nurses should advocate for the mental well-being of parents of CSHCN.
Abstract

Keywords:
CMCCSHCNChronic illnessParentsPediatric inventory for parentsStress

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