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YouTube as a source of information on systemic sclerosis
Cagri Unal-Ulutatar1,2, Firat Ulutatar3
1Sancak Medical Center, Physical Medicine and Rehabilitation, Istanbul, Turkey.
International Journal of Rheumatic Diseases
|June 6, 2022
Summary
Most YouTube videos on systemic sclerosis (scleroderma) offer useful information. However, viewers should critically evaluate content for potential advertisements and misleading details, especially patients.
Area of Science:
- Rheumatology
- Medical Education
- Digital Health
Background:
- YouTube is a widely used platform for health information by patients and healthcare professionals.
- The quality and reliability of YouTube videos concerning systemic sclerosis (scleroderma) remain largely unassessed.
Purpose of the Study:
- To evaluate the reliability and quality of YouTube videos discussing systemic sclerosis.
- To categorize videos based on their content and assess their educational value.
Main Methods:
- A systematic search for "systemic sclerosis" and "scleroderma" videos on YouTube was conducted.
- Video features (views, duration) were recorded.
- Reliability (modified DISCERN) and quality (Global Quality Scale - GQS) were assessed.
- Videos were categorized as useful, misleading, or patient experiences.
Main Results:
- Of 115 analyzed videos, 73% were useful, 17.4% misleading, and 9.6% patient experiences.
- Useful videos demonstrated significantly higher reliability and quality scores than misleading or patient experience videos (P < 0.001).
- High-quality videos were predominantly uploaded by academic institutions, professional organizations, or physicians.
Conclusions:
- The majority of YouTube videos on scleroderma provide valuable educational content for patients and physicians.
- Caution is advised, as some videos may contain advertisements or inaccurate information, particularly for patient audiences.
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