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02:28
Author Spotlight: Self-Assessment Protocol for Predicting Psoriatic Arthritis in Psoriasis Patients
Published on: March 1, 2024
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An Online Community for Patient with Psoriasis with Built-in Self-Reported Questionnaires
Giuliana Colussi1, Delfina Inda1, Lucila Bruchanski1
1Health Informatics Department, Hospital Italiano de Buenos Aires, Argentina.
Studies in Health Technology and Informatics
|June 8, 2022
Summary
This study explored an online psoriasis platform, finding that abnormal self-reported results often recommended outpatient visits. However, a direct link between severity scores and appointment scheduling was not statistically significant.
Area of Science:
- Dermatology
- Health Informatics
- Patient-Reported Outcomes
Background:
- Online health communities are increasingly used to support patients with chronic conditions like psoriasis.
- Integrating patient-reported outcomes (PROs) into these platforms can potentially bridge the gap between patient self-assessment and clinical care.
- Understanding user engagement and the impact of PROs on healthcare-seeking behavior is crucial for optimizing digital health tools.
Purpose of the Study:
- To develop and evaluate an online psoriasis community integrated within a Personal Health Record (PHR).
- To analyze user interactions within the platform, specifically focusing on the use of self-report questionnaires.
- To investigate the relationship between questionnaire results and subsequent patient contact with the healthcare system.
Main Methods:
- Development of an online psoriasis community in collaboration with dermatologists.
- Tracking user interactions, including forum participation and completion of self-report questionnaires.
- Analysis of the correlation between abnormal questionnaire results and healthcare system contact (e.g., outpatient visits).
Main Results:
- Out of 2175 users, 477 engaged with the forums.
- Among users completing questionnaires, 60% had at least one abnormal result, recommending an outpatient visit.
- A trend was observed, but no statistically significant association was found between questionnaire severity and visit scheduling.
Conclusions:
- The study highlights the potential of online communities and PROs in identifying patients who may require clinical attention for psoriasis.
- While a significant link between self-reported severity and healthcare utilization was not confirmed, the findings suggest a valuable role for such platforms in patient management.
- This research is the first to examine the relationship between patient-reported psoriasis severity and subsequent healthcare system engagement via an online platform.
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