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Epidemiologic study of patients after Fontan operation based on Medical Aid Program for Chronic Pediatric Diseases of

Takanari Fujii1, Akinori Moriichi2, Naoko Kakee2

  • 1Pediatric Heart Disease and Adult Congenital Heart Disease Center, Showa University Hospital, Tokyo, Japan.

Cardiology in the Young
|June 9, 2022
PubMed

Insights

This study analyzed nationwide data of pediatric patients who underwent the Fontan procedure in Japan. It clarifies the current status and outcomes for young individuals with single-ventricle physiology, aiding disease management.

Area of Science:

  • Pediatric Cardiology
  • Congenital Heart Disease Epidemiology

Background:

  • Nationwide data on single-ventricle physiology patients are scarce.
  • The Medical Aid Program for Chronic Pediatric Diseases of Specified Categories in Japan supports children under 20 with chronic conditions.

Purpose of the Study:

  • To investigate the epidemiology and medium- to long-term outcomes of patients following a Fontan procedure using registry data.
  • To examine the utility of this epidemiologic investigation for identifying real-world objectives and clinical applications.

Main Methods:

  • Utilized the database of the Medical Aid Program for Chronic Pediatric Diseases of Specified Categories.
  • Identified 2862 patients who underwent a Fontan operation from 18,589 registered patients with chronic heart disease.
  • Evaluated symptoms, treatment, and somatic growth data.

Main Results:

  • Clarified nationwide data on the current status of post-Fontan patients under 20 years of age in Japan.
  • Provided insights into the comprehensive status of pediatric patients with chronic heart disease.

Conclusions:

  • The study elucidated the current status of post-Fontan patients under 20 years in Japan.
  • Data analysis contributed to improved disease management for patients with single-ventricle physiology.

Keywords:
CHDFontan operationepidemiologysingle-ventricle physiology

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