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Measurements of Motor Function and Other Clinical Outcome Parameters in Ambulant Children with Duchenne Muscular Dystrophy
Published on: January 12, 2019
Jenna Jacob1, Julian Edbrooke-Childs2,3, Halina Flannery4
1Child Outcomes Research Consortium, Anna Freud Centre, London, UK jenna.jacob@annafreud.org.
Young people with chronic illnesses often face mental health challenges. Goal-based outcomes, reflecting individual patient priorities, offer a nuanced approach to measuring recovery beyond physical health in pediatric care.
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