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The National Audit of Primary Biliary Cholangitis (PBC) in the United Kingdom: Defining the Audit Dataset and Data
Laura Burke1, Steve Flack2, Rebecca Jones3
1Hepatology, Leeds Teaching Hospitals Trust, Leeds, GBR.
Insights
This study proposes the first UK-wide audit of primary biliary cholangitis (PBC) management. It aims to benchmark National Health Service (NHS) trusts against British Society of Gastroenterology guidelines for improved patient care.
Area of Science:
- Hepatology
- Gastroenterology
- Clinical Audit
Background:
- Primary biliary cholangitis (PBC) is a chronic liver disease leading to cirrhosis and complications.
- PBC significantly contributes to liver-related morbidity and mortality in the UK.
- The British Society of Gastroenterology (BSG) has established guidelines and audit standards for PBC management.
Purpose of the Study:
- To conduct the first UK-wide audit of primary biliary cholangitis (PBC) management.
- To benchmark NHS trusts and health boards against BSG audit standards.
- To guide targeted improvements in PBC healthcare delivery across the UK.
Main Methods:
- A UK-wide audit of PBC management will be conducted.
- The audit will be sanctioned by the BSG and the British Association for Study of the Liver (BASL).
- Performance will be benchmarked against established BSG audit standards.
Main Results:
- Results will provide a benchmark of current PBC management across NHS trusts and health boards.
- The audit will identify areas for improvement in PBC care.
- Data will inform targeted strategies for enhancing patient outcomes.
Conclusions:
- The proposed audit is essential for evaluating and improving PBC care in the UK.
- Benchmarking against BSG standards will drive quality improvement initiatives.
- This initiative supports better health outcomes for patients with primary biliary cholangitis.
Abstract:
Primary biliary cholangitis (PBC) is a debilitating chronic liver disease that progresses to cirrhosis with attendant complications in a substantial proportion of patients. It is a major cause of liver-related morbidity and mortality in the United Kingdom (UK). The British Society of Gastroenterology (BSG) published guidelines on PBC management, which included key audit standards. Therefore, we propose the first UK-wide audit of the management of PBC, sanctioned by the BSG and the British Association for Study of the Liver (BASL), to benchmark NHS trusts and health boards against these audit standards as a guide to targeted improvement in the delivery of PBC-related health care.
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