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Data resource: Children receiving care and support and children in need, administrative records in Wales
Alexandra Lee1, Martin Elliott2, Jonathan Scourfield2
1Population Data Science, Swansea University Medical School, Swansea, SA2 8PP, UK.
Insights
The Children in Need (CIN) and Children Receiving Care and Support (CRCS) datasets in Wales offer valuable research insights. While health service use is similar to the general population, GP visit patterns differ for these children.
Area of Science:
- Public Health
- Social Care Research
- Health Informatics
Background:
- The Children in Need (CIN) dataset in Wales collects data on children's needs and social care support.
- Prior to April 2016, this was known as the CIN census; it was renamed Children Receiving Care and Support (CRCS) post-Social Services and Well-being (Wales) Act 2014.
Purpose of the Study:
- To describe the CIN and CRCS datasets available for research.
- To explore the potential and limitations of these datasets.
- To detail data access via the Secure Anonymised Information Linkage (SAIL) Databank and linkages to health records.
Main Methods:
- De-identified CIN and CRCS data were transferred to the SAIL Databank with Anonymised Linking Fields (ALF).
- Linkage utilized Unique Pupil Numbers (UPN), excluding children under three without a UPN.
- Health service utilization was compared between CIN/CRCS populations and non-CIN/CRCS populations.
Main Results:
- SAIL Databank holds 25,972 CRCS records (81% of total) and 108,449 CIN records (79% of total).
- Overall health service use was comparable between CIN/CRCS and non-CIN/CRCS groups.
- Children in CIN had fewer GP visits, while CRCS children had more GP visits than the comparison group.
Conclusions:
- Welsh CIN and CRCS datasets are accessible to researchers via the SAIL Databank.
- Ongoing work aims to enhance data quality and understanding of health service use in these populations.
Introduction:
In Wales, the Children in Need (CIN) dataset includes information relating to needs of children and social care support. Before the Social Services and Well-being (Wales) Act 2014 came into force in April 2016, this data collection was named the Children in Need census, changing to Children Receiving Care and Support (CRCS) after this date to reflect better the children eligible for inclusion. This paper describes these datasets, their potential for research and their limitations. We describe data that researchers can access via the Secure Anonymised Information Linkage (SAIL) Databank and exploratory linkages made to health records.
Methods:
CIN and CRCS data were transferred to the SAIL Databank using a standardised approach to provide de-identified data with Anonymised Linking Fields (ALF) for successfully matched records. The linkage method relies on the use of Unique Pupil Numbers (UPN). As such, no records are currently available for children without a UPN, which includes most under age three. ALFs enabled linkage to individual-level health data within SAIL. Health service use was compared to non-CIN/CRCS populations.
Results:
CRCS data held within the SAIL Databank comprises 25,972 records, 81% of the total number of records reported by the Welsh Government. The CIN data contains 108,449 records, 79% of the Welsh Government's records for this data collection. Health service use of children in need, and children receiving care and support, was roughly equal to that of the non-CIN/CRCS population, except GP visits, where children in need had fewer consultations, and children receiving care and support had more consultations than the comparison population.
Conclusion:
Researchers can access Welsh CIN and CRCS datasets through the SAIL Databank, enabling research opportunities. Work is ongoing to improve records and to understand better the health and health service use among children captured by CIN and CRCS censuses.
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