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Published on: August 1, 2019
Readiness of Advance Care Planning Among Patients With Cardiovascular Disease
Noriko Fukue1,2, Emiko Naito3, Masayasu Kimura1
1Department of Cardiology, Tokuyama Medical Association Hospital, Shunan, Japan.
Insights
Advance care planning (ACP) is crucial for heart failure (HF) patients. While HF patients show readiness for ACP, frailty negatively impacts their desire for it, suggesting earlier intervention is needed.
Area of Science:
- Gerontology
- Cardiology
- Palliative Care
Background:
- Advance care planning (ACP) is vital for improving end-of-life outcomes in heart failure (HF) patients.
- Initiating ACP is challenging due to its sensitive nature for HF patients and their families.
- This study explored ACP readiness and its association with clinical parameters in cardiovascular disease patients.
Purpose of the Study:
- To assess patients' readiness for advance care planning (ACP).
- To investigate the relationship between the desire for ACP and clinical prognostic parameters in patients with cardiovascular diseases, particularly heart failure (HF).
- To understand end-of-life care preferences among patients desiring ACP.
Main Methods:
- Eighty-one patients (62 with HF) undergoing cardiac rehabilitation were surveyed on ACP experience, desire, disease understanding, and lifestyle.
- Multiple logistic regression analysis identified clinical parameters associated with ACP desire.
- Prognostic scales (EFFECT, SPICT-JP) assessed need for ACP, and patient preferences for end-of-life care were recorded.
Main Results:
- Only 11.1% had prior ACP experience, but 34.6% desired it; 54.3% did not.
- Patients with HF demonstrated higher ACP acceptance (OR 5.56, p=0.015).
- Skeletal muscle frailty was linked to lower ACP acceptance, while non-frail patients showed higher desire. Prognostic tools identified patients needing ACP, yet many did not desire it.
Conclusions:
- Patients with HF generally show readiness for ACP, but skeletal muscle frailty hinders this preference.
- A significant gap exists between identified need for ACP and patient desire, indicating missed opportunities.
- Proactive introduction of ACP before the onset of frailty is recommended for optimal end-of-life care planning in HF patients.
Background:
Advance care planning (ACP) is a widely advocated strategy to improve outcomes at end-of-life care for patients suffering from heart failure (HF). However, finding the right time to start ACP is challenging for healthcare providers because it is often a sensitive issue for patients with HF and their families. We interviewed patients with cardiovascular diseases regarding ACP readiness and investigated the relationship between the ACP desire and multiple clinical prognostic parameters.
Method:
Eighty-one patients (average age 81.8 ± 10.3 years old, 42 men, 62 cases of HF) who introduced cardiac rehabilitation were inquired about previous ACP experience, a desire for ACP, understanding of their cardiovascular diseases, and lifestyle-associated questionnaires. Multiple logistic regression analyses were employed to identify the clinical parameters associated with ACP desire. Patients who desired ACP were also asked about their preferences for medical care at the end-of-life.
Results:
Nine patients (11.1%) had previous experience with ACP, and 28 (34.6%) preferred to implement ACP. Patients who did not want to implement ACP were 54.3%. Patients with HF showed a higher acceptance rate of ACP (odds ratio [OR] 5.56, p = 0.015). Interestingly, patients harboring skeletal muscle frailty showed lower ACP acceptance, while patients with non-frailty rather positively wanted to implement ACP. Two types of prognosis evaluation scales, such as the Enhanced Feedback for Effective Cardiac Treatment (EFFECT) risk score and the Japanese Version of Supportive and Palliative Care Indicators Tool (SPICT-JP), identified 31 patients (38.3%) needing ACP; however, 19 (61.3%) did not want ACP. The wish not to attempt resuscitation and life-prolonging treatment at the end-of-life reached approximately 70% among patients who requested ACP.
Conclusions:
Although patients with HF tended to be ready for implementing ACP, the presence of skeletal muscle frailty was negatively associated with ACP preference. Indeed, patients who should be considered ACP were not carried out and did not desire it. Earlier introduction of ACP into patients before having skeletal muscle frailty may be considered.
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