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Émilie Gaborit, Philippe Terral, Jean-Paul Génolini

    Sante Publique (Vandoeuvre-Les-Nancy, France)
    |June 20, 2022
    PubMed
    Summary
    This summary is machine-generated.

    Patient Therapeutic Education (TPE) programs help patients manage oral cancer drugs by integrating knowledge acquisition and experience sharing. Interactions within TPE enhance patient self-narratives and knowledge, promoting empowerment.

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    Area of Science:

    • Health Sciences
    • Social Sciences
    • Patient Education

    Background:

    • Patient Therapeutic Education (TPE) programs aim to improve self-management skills for oral cancer drugs.
    • These programs uniquely combine knowledge acquisition with group verbalization of patient experiences.

    Purpose of the Study:

    • To analyze how social interactions in TPE influence patient self-narratives and knowledge sharing.
    • To understand the visibility and legitimacy of patient experiences within TPE workshops.

    Main Methods:

    • An ethnographic survey of TPE workshops was conducted over two years.
    • Interviews were held with 24 participants (professionals and patients) to review their TPE experiences.

    Main Results:

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  • Patient self-narratives varied based on the perceived legitimacy of their experiences and their ability to share them.
  • Interactions and caregiver facilitation amplified narratives aligned with patient empowerment, while others were obscured.

    • Conclusions:

    • Self-narratives are a valid form of knowledge in TPE, but their visibility depends on group dynamics and perceived legitimacy.
    • TPE facilitation can empower patients by highlighting certain experiences, potentially marginalizing others.