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Continuing Care01:25

Continuing Care

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Continuing care describes the variety of health, personal, and social services provided over a prolonged period. The need for continuing care is increasing because people are living longer. Many people do not have families or others to care for them. Continuing care is mainly for patients who are disabled, functionally dependent, or suffering from a terminal disease. It is available within institutional settings or in homes. Examples include nursing centers or facilities, assisted living,...
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Updated: Sep 7, 2025

Clinical Practice Protocol of Creative Music Therapy for Preterm Infants and Their Parents in the Neonatal Intensive Care Unit
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Neonatal palliative care practices: an Indian perspective.

Dwayne Mascarenhas1, Medha Goyal1, Ruchi Nanavati1

  • 1Department of Neonatology, Seth GS Medical College & King Edward Memorial Hospital, Mumbai, India.

Paediatrics and International Child Health
|June 22, 2022
PubMed
Summary

Neonatal palliative care (NPC) is underdeveloped in India. While neonatologists know about NPC, most units lack palliative teams and structured policies, highlighting an urgent need for integration into routine neonatal intensive care unit (NICU) care.

Keywords:
Neonatal palliationbarriersend-of-life carelow- and middle-income countries

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Area of Science:

  • Medical Research
  • Palliative Care
  • Neonatology

Background:

  • Neonatal palliative care (NPC) aims to alleviate suffering in non-recovering neonates.
  • NPC is crucial but in early stages globally, including India.

Purpose of the Study:

  • Assess neonatologists' knowledge and understanding of NPC.
  • Describe current NPC practices and barriers in India.

Main Methods:

  • Cross-sectional, web-based national survey conducted in 2019-2020.
  • 22-question survey distributed to neonatologists in level III NICUs across India.

Main Results:

  • 90.8% knew NPC concept; 93.8% identified conditions needing palliation.
  • 81.5% of units lacked dedicated palliative teams; few had structured policies.
  • Barriers included inadequate knowledge, infrastructure, human resources, and lack of guidelines/legal support.

Conclusions:

  • Significant gap in neonatal end-of-life care in India identified.
  • Urgent need to integrate NPC into routine neonatal intensive care.