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Design and Development of a Digital Counseling Program for Chronic Kidney Disease
Stephanie W Ong1,2,3,4, Julia V Wong5, Bourne L Auguste6,7
1Connected Care, University Health Network, Toronto, ON, Canada.
Canadian Journal of Kidney Health and Disease
|June 24, 2022
Summary
This study developed ODYSSEE Kidney Health, a digital counseling program for chronic kidney disease (CKD) patients. User-centered design ensured patient satisfaction and program value for self-management and quality of life.
Area of Science:
- Digital Health
- Nephrology
- Health Informatics
Background:
- Self-management improves quality of life for chronic kidney disease (CKD) patients.
- Accessible self-management tools are crucial for adherence to self-care behaviors.
- Digital health offers efficient access to self-management programs.
Purpose of the Study:
- To present the design and development of ODYSSEE Kidney Health, a digital counseling program for CKD patients.
- To promote self-care behaviors and support health-related quality of life in CKD patients.
Main Methods:
- Iterative, user-centered design process for ODYSSEE Kidney Health development.
- Usability testing with 11 CKD patients (7 male, 4 female, ages 30-82) at a single Canadian center.
- Thematic analysis of semi-structured interviews and goal-oriented tasks to gather user feedback.
Main Results:
- Participants reported positive satisfaction with the program's navigation, layout, and content.
- Key themes identified: impact on nephrology care, technical features, and CKD content.
- Patients found the program valuable for daily CKD self-management.
Conclusions:
- User-centered design is vital for the acceptability and adoption of digital counseling programs for CKD.
- Ensuring patient perspective is key to adherence and sustained behavioral change in self-management interventions.
- ODYSSEE Kidney Health shows promise in supporting CKD self-care and improving quality of life.
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