Adolescents' and Young Adults' Recommendations for Implementing Healthcare Transition in Rheumatology: A Mixed...

Area of Science:

• Rheumatology
• Adolescent and Young Adult (AYA) Health
• Healthcare Transition

Background:

• Healthcare transition is crucial for AYAs with chronic conditions like rheumatic diseases.
• Existing transition models may not fully address the unique needs of AYAs in rheumatology care.
• Patient perspectives are vital for optimizing transition services.

Purpose of the Study:

• To explore AYAs' perspectives on implementing the Six Core Elements of Healthcare Transition in rheumatology.
• To gather recommendations for improving healthcare transition support for AYAs with rheumatic conditions.

Main Methods:

• A mixed-methods approach combining qualitative focus groups (n=39) and a quantitative national survey (n=137).
• Participants were AYAs (ages 16-28) with self-reported rheumatic conditions.
• Data analysis involved a multidisciplinary team including patients.

Main Results:

• AYAs reacted favorably to the Six Core Elements framework and offered practical implementation suggestions.
• Key recommendations for engagement include framing transition as empowerment, structured education, and parental involvement.
• AYAs prefer learning transitional skills and discussing topics with their rheumatology team, through various formats like patient portals or group settings.

Conclusions:

• Incorporating AYAs' perspectives strengthens educational programs for healthcare transition.
• Empowerment and structured support from rheumatology teams are essential for successful AYAs' healthcare transition.