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Assessing Disparities in COVID-19 Testing Using National COVID Cohort Collaborative
Jinyan Lyu1, Wanting Cui1, Joseph Finkelstein1
1Icahn School of Medicine at Mount Sinai, New York NY, USA.
The National COVID Cohort Collaborative (N3C) dataset shows disparities in COVID-19 testing representation. Minority groups, older adults, and females were more represented, while younger individuals and Hispanic/Latino populations were less represented compared to census data.
Area of Science:
- Public Health
- Health Informatics
- Epidemiology
Background:
- The COVID-19 pandemic necessitated large-scale data collection for research.
- Understanding representation in health datasets is crucial for identifying health disparities.
- The National COVID Cohort Collaborative (N3C) dataset provides a valuable resource for studying the pandemic's impact.
Purpose of the Study:
- To assess potential disparities in COVID-19 testing representation within the N3C dataset.
- To compare demographic characteristics of patients in the N3C dataset with US census data for ten selected states.
- To identify underrepresented and overrepresented populations in COVID-19 testing data.
Main Methods:
- Utilized the NCATS National COVID Cohort Collaborative (N3C) dataset, encompassing over 14 billion medical records.
- Identified over 12 million patients tested for COVID-19 across the US.
- Compared demographic distributions (race, ethnicity, age, sex, urban/rural) from the N3C dataset against corresponding US state census data for ten states.
Main Results:
- Minority racial groups showed higher prevalence in the N3C dataset compared to census data.
- Hispanic and Latino populations were slightly underrepresented in N3C relative to state census data.
- Older adults (over 65) were overrepresented, while children (under 18) were underrepresented.
- Females were more represented in N3C than in state data.
- All ten states exhibited a higher representation of urban populations versus rural populations in N3C compared to census data.
Conclusions:
- The N3C dataset demonstrates demographic variations in COVID-19 testing representation compared to the general population.
- Findings highlight potential biases in data collection that may affect the generalizability of research findings.
- Further investigation is needed to understand the implications of these representation disparities for public health initiatives and equitable care.
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