Jove
Visualize
Contact Us
JoVE
x logofacebook logolinkedin logoyoutube logo
ABOUT JoVE
OverviewLeadershipBlogJoVE Help Center
AUTHORS
Publishing ProcessEditorial BoardScope & PoliciesPeer ReviewFAQSubmit
LIBRARIANS
TestimonialsSubscriptionsAccessResourcesLibrary Advisory BoardFAQ
RESEARCH
JoVE JournalMethods CollectionsJoVE Encyclopedia of ExperimentsArchive
EDUCATION
JoVE CoreJoVE BusinessJoVE Science EducationJoVE Lab ManualFaculty Resource CenterFaculty Site
Terms & Conditions of Use
Privacy Policy
Policies

Related Concept Videos

Ethical Standards I01:25

Ethical Standards I

959
The American Nurses Association (ANA) created and implemented the first nationally accepted Code of Ethics for Nurses with Interpretive Statements. The Code of Ethics is a living document regularly updated by the ANA and establishes an ethical standard that is non-negotiable for nurses in all roles and settings.
The Code of Ethics provisions outline the nurse's duty to the patient, the healthcare team, the profession, and society. The Code's fundamental principles include advocacy,...
959
Ethical Standards II01:23

Ethical Standards II

788
Ethical standards are the backbone of nursing practice, guiding nurses as they interact with patients, families, and colleagues. These standards are crucial for providing safe, empathetic care centered on the patient's needs.
Nurses are entrusted with upholding various ethical principles and standards. Nurses forge solid therapeutic relationships using trust, empathy, autonomy, confidentiality, and professional competence.
Confidentiality is crucial, embodying respect for individual privacy...
788
Guidelines and Strategies for Safe Computer Charting01:18

Guidelines and Strategies for Safe Computer Charting

867
The guidelines and strategies provided by the American Nurses Association (ANA) and the Canadian Nurses Association (CNA) offer essential principles for ensuring safe and secure computer charting systems in healthcare settings. Let's break down each recommendation:
Maintain Confidentiality and Security:
867
Legal Guidelines for Documentation01:06

Legal Guidelines for Documentation

1.4K
The legal guidelines for nursing documentation are essential for ensuring accurate, professional, and ethical recording of patient care. The guidelines are discussed here:
1.4K
Standards of Care II01:19

Standards of Care II

724
Nurses bear specific legal responsibilities under several federal statutes, including:
724
Purpose of Health Records II01:19

Purpose of Health Records II

1.0K
Health records serve various essential purposes in the healthcare system. Here are some key purposes:
1.0K

You might also read

Related Articles

Articles linked to this work by shared authors, journal, and citation graph.

Sort by
Same author

Imagining Genomics and Population Health in 2050: Anticipating Future Research, Policy, and Governance Needs.

Public health genomics·2026
Same author

Prenatal maternal stress is associated with alterations in the structural integrity of the hypothalamic-pituitary-gonadal axis 20 years later: Project Ice Storm.

Human reproduction (Oxford, England)·2026
Same author

Amygdala and hippocampal contributions to broad autism phenotype: Project Ice Storm.

Translational psychiatry·2026
Same author

Practitioner Review: Clinical insights from attachment theory and research for professionals working with young children and their families.

Journal of child psychology and psychiatry, and allied disciplines·2026
Same author

Neurodiversity-Affirming Principles in Oncology Treatment: A Lived-Experience Case Study.

Psycho-oncology·2026
Same author

Paths of legal recognition of genetic counselors in Canada: A framework for action.

Journal of genetic counseling·2026

Related Experiment Video

Updated: Sep 5, 2025

Making MR Imaging Child's Play - Pediatric Neuroimaging Protocol, Guidelines and Procedure
15:18

Making MR Imaging Child's Play - Pediatric Neuroimaging Protocol, Guidelines and Procedure

Published on: July 30, 2009

18.3K

Sharing and Safeguarding Pediatric Data.

Dimitri Patrinos1, Bartha Maria Knoppers1, David P Laplante2,3

  • 1Centre of Genomics and Policy, School of Biomedical Sciences, Faculty of Medicine and Health Sciences, McGill University, Montreal, QC, Canada.

Frontiers in Genetics
|July 7, 2022
PubMed
Summary

Pediatric data sharing is vital for advancing child health research. Model consent clauses can help overcome ethical challenges, enabling crucial data sharing for minors while ensuring protection.

Keywords:
data sharinggenomicspediatric researchpolicyresearch ethics

More Related Videos

Biobank for Translational Medicine: Standard Operating Procedures for Optimal Sample Management
08:01

Biobank for Translational Medicine: Standard Operating Procedures for Optimal Sample Management

Published on: November 30, 2022

4.6K
TMT Sample Preparation for Proteomics Facility Submission and Subsequent Data Analysis
07:44

TMT Sample Preparation for Proteomics Facility Submission and Subsequent Data Analysis

Published on: June 8, 2020

12.8K

Related Experiment Videos

Last Updated: Sep 5, 2025

Making MR Imaging Child's Play - Pediatric Neuroimaging Protocol, Guidelines and Procedure
15:18

Making MR Imaging Child's Play - Pediatric Neuroimaging Protocol, Guidelines and Procedure

Published on: July 30, 2009

18.3K
Biobank for Translational Medicine: Standard Operating Procedures for Optimal Sample Management
08:01

Biobank for Translational Medicine: Standard Operating Procedures for Optimal Sample Management

Published on: November 30, 2022

4.6K
TMT Sample Preparation for Proteomics Facility Submission and Subsequent Data Analysis
07:44

TMT Sample Preparation for Proteomics Facility Submission and Subsequent Data Analysis

Published on: June 8, 2020

12.8K

Area of Science:

  • Pediatric research ethics
  • Data sharing policies
  • Child health and development

Background:

  • Data sharing is essential for scientific progress, particularly in understanding human health.
  • Pediatric research requires strong ethical protections, but overly restrictive policies can hinder data sharing for minors.
  • Sharing pediatric data is critical for advancing scientific knowledge on child health, well-being, and development.

Purpose of the Study:

  • To highlight the critical importance of pediatric data sharing for scientific advancement.
  • To address the ethical considerations and challenges in sharing data from pediatric research.
  • To propose model consent clauses as a practical solution for enabling pediatric data sharing.

Main Methods:

  • Review of current policies and initiatives related to pediatric data sharing.
  • Discussion of ethical issues and challenges specific to pediatric data.
  • Development and proposal of model consent clauses for pediatric research.

Main Results:

  • Overly protective policies can exclude minors from valuable data sharing initiatives.
  • Model consent clauses can help navigate ethical complexities in pediatric data sharing.
  • Effective consent clauses can facilitate data sharing while upholding ethical standards.

Conclusions:

  • Facilitating pediatric data sharing is crucial for advancing child health and development research.
  • Model consent clauses offer a practical approach to balance ethical protections with the need for data sharing.
  • Implementing clear consent strategies is key to unlocking the potential of pediatric data for future health benefits.