Related Experiment Video

Updated: Sep 5, 2025

Creating Rigidly Stabilized Fractures for Assessing Intramembranous Ossification, Distraction Osteogenesis, or Healing of Critical Sized Defects
07:35

Creating Rigidly Stabilized Fractures for Assessing Intramembranous Ossification, Distraction Osteogenesis, or Healing of Critical Sized Defects

Published on: April 11, 2012

18.4K

The moral experiences of children with osteogenesis imperfecta

Yi Wen Wang1,2, Franco A Carnevale1,2, Maria Ezcurra1,2

  • 15620McGill University, Canada.

Nursing Ethics
|July 8, 2022
PubMed

Insights

Children with osteogenesis imperfecta (OI) want more involvement in their healthcare. Art-making can help them express themselves and improve their participation and moral experiences.

Area of Science:

  • Pediatric Healthcare
  • Bioethics
  • Child Psychology

Background:

  • Ethical concerns in pediatric osteogenesis imperfecta (OI) care can negatively affect children's moral experiences.
  • Moral experiences relate to a child's fulfillment of personal values and beliefs.

Purpose of the Study:

  • To explore children's desired versus actual participation in healthcare decisions and actions within a hospital and community setting.
  • To investigate the use of art-making as a tool to enhance self-expression and participation.

Main Methods:

  • Focused ethnography utilizing the moral experiences framework.
  • Data collection included key informant interviews, participant observations, semi-structured interviews, and practice-based research (art-making) with 10 children with OI.
  • Study conducted at a pediatric orthopedic hospital.

Main Results:

  • Children with OI expressed a desire for greater participation in their care.
  • A lack of resources and provider encouragement sometimes limited their actual involvement.
  • Art-making emerged as a valuable method for facilitating children's voices and engagement in health discussions.

Conclusions:

  • Healthcare providers should consider incorporating art-making and educational resources into care.
  • These interventions can help bridge the gap between desired and actual participation.
  • Promoting greater participation can lead to enhanced moral experiences for children with OI.
Abstract

Keywords:
Artagencychild ethicschronic illnessdisabilitymoral experiencequalitative research

More Related Videos

Culturing and Measuring Fetal and Newborn Murine Long Bones06:58

Culturing and Measuring Fetal and Newborn Murine Long Bones

Published on: April 26, 2019

8.3K
Establishment of Cancer Stem Cell Cultures from Human Conventional Osteosarcoma09:25

Establishment of Cancer Stem Cell Cultures from Human Conventional Osteosarcoma

Published on: October 14, 2016

19.2K

Related Concept Videos

Bone Disorders01:29

Bone Disorders

Aging and its effect on bone remodeling is the most common cause of bone disorders. In young and healthy people, bone deposition and resorption happen at an equal rate to maintain optimal bone health.
Bone deposition is also affected by the levels of sex hormones like estrogen and testosterone that promote osteoblast activity and bone matrix synthesis. When the level of these hormones decreases due to aging, it causes a reduction in bone deposition. As a result, bone resorption by osteoclasts...
3.9K
Bone Formation by Endochondral Ossification01:24

Bone Formation by Endochondral Ossification

Bone formation, or ossification, begins around the sixth to seventh week of embryonic development. Most bones develop from a cartilaginous template through the process of endochondral ossification. Cartilage formation begins when clusters of mesenchymal cells differentiate into chondrocytes. These chondrocytes proliferate rapidly and secrete an extracellular matrix that becomes encased in a membrane called the perichondrium. The resulting cartilage model provides a template that resembles the...
5.2K
Changes in the Appendicular Skeleton with Age01:09

Changes in the Appendicular Skeleton with Age

The upper and lower limb initially develops as a small bulge called a limb bud, which appears on the lateral side of the early embryo. The upper limb bud appears near the end of the fourth week of development, with the lower limb bud appearing shortly after.
Initially, the limb buds consist of a core of mesenchyme covered by a layer of ectoderm. The ectoderm at the end of the limb bud thickens to form a narrow crest called the apical ectodermal ridge. This ridge stimulates the underlying...
2.2K
Self-Evaluation: Self-Enhancement and Self-Verification03:00

Self-Evaluation: Self-Enhancement and Self-Verification

Social psychologists have documented that feeling good about ourselves and maintaining positive self-esteem is a powerful motivator of human behavior (Tavris & Aronson, 2008). In the United States, members of the predominant culture typically think very highly of themselves and view themselves as good people who are above average on many desirable traits (Ehrlinger, Gilovich, & Ross, 2005). Often, our behavior, attitudes, and beliefs are affected when we experience a threat to our...
5.3K
Fractures: Bone Repair01:27

Fractures: Bone Repair

Treatment for a fracture is based on the type of break, the bone affected, and the patient's age.
Minor fractures with no bone displacement are treated by immobilizing the fractured bone using a cast or splint. However, in the case of fractures with displaced bones, the broken bones are repositioned before immobilization to ensure successful healing without deformation and loss of function. The realignment of fractured bone ends is performed through a process called reduction. If the...
3.6K
The Functions of the Skeletal System01:22

The Functions of the Skeletal System

The most apparent functions of the skeletal system are support, protection, and movement. However, bone tissue also performs several other critical metabolic functions. For one, the bone matrix acts as a reservoir for a number of minerals important to the functioning of the body, especially calcium and phosphorus. These minerals, present in the bone tissue, can be released back into the bloodstream when required. Calcium ions, for example, are essential for muscle contractions and controlling...
4.2K