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End-of-life care of people with long-term neurological conditions
Krishnan Nair1, Mark Lee2, Esther Hobson3
1Management, Sheffield Teaching Hospitals NHS Foundation Trust, Sheffield, UK siva.nair@nhs.net.
Abstract:
Guidance and protocols of end-of-life care have been directed towards the care of patients with cancer. It is possible to extrapolate some of these to people with long-term neurological conditions, but there are obvious differences. Neurological conditions have widely different time courses of progression, making the timing of these discussions challenging. The common issues around end-of-life care include knowing when to start discussions, approaching advance planning, managing common symptoms, diagnosing the dying phase, withdrawing life-sustaining treatments, providing support for family and carers and judging how to involve specialist palliative care teams. End-of-life care needs close collaboration between neurology, specialist palliative care and general practice.
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