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Disparities in Early Intervention Program Participation by Children With Autism Spectrum Disorder in a US
Josephine Shenouda1,2, Emily Barrett1, Amy L Davidow3
1Department of Biostatistics and Epidemiology, School of Public Health, Rutgers, Piscataway, New Jersey.
Early intervention services for autism spectrum disorder (ASD) are crucial. While participation in the Early Intervention Program (EIP) increased from 2006-2016, disparities based on race, ethnicity, and socioeconomic status persist, necessitating further action.
Area of Science:
- Public Health
- Developmental Pediatrics
- Health Services Research
Background:
- Early interventions significantly improve outcomes for children with autism spectrum disorder (ASD).
- The Early Intervention Program (EIP) is a legally mandated service system in the US for young children with developmental delays or disabilities.
- The utilization of EIP services by children diagnosed with ASD remains largely unquantified.
Purpose of the Study:
- To assess the utilization of Early Intervention Program (EIP) services among children diagnosed with autism spectrum disorder (ASD) between 2006 and 2016.
- To identify and describe factors associated with EIP participation in this population.
Main Methods:
- A cross-sectional study utilizing repeated data from the New Jersey Autism Study (NJAS) surveillance from 2006 to 2016.
- Included 4050 children aged 8 years with ASD, assessing demographic, ecological, and clinical factors, alongside temporal patterns.
- Standard and multilevel logistic regression models were employed to analyze EIP participation.
Main Results:
- Nearly half (46.6%) of children aged 8 with ASD received EIP services between 2006 and 2016, with increased participation over time.
- Significant disparities were observed: non-Hispanic Black children had lower odds of EIP participation compared to non-Hispanic White children (AOR=0.67).
- Children in affluent areas had higher odds of EIP service receipt (AOR=1.71), and those born in 2008 had higher odds than those born in 1998 (AOR=2.64).
Conclusions:
- While EIP participation for children with ASD has increased, substantial socioeconomic and racial/ethnic disparities persist.
- These findings underscore the need for universal ASD screening and targeted strategies to ensure equitable access to early intervention services.
- Addressing these disparities is critical for improving long-term outcomes for all children with ASD.
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