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Meaningful involvement of children and young people in health technology development
Gemma Wheeler1, Nathaniel Mills1,2, Ursula Ankeny3
1NIHR Children and Young People MedTech Co-operative, Sheffield Children's NHS Foundation Trust, Sheffield, UK.
Insights
Involving children and young people (CYP) in health technology development ensures usable and acceptable outcomes. Utilizing methods like co-design enhances the creation of impactful health technologies for diverse needs.
Area of Science:
- Pediatric Health Technology
- Human-Computer Interaction
- User-Centered Design
Background:
- Children and young people (CYP) undergo significant developmental changes requiring tailored health technologies.
- Excluding CYP from technology development risks creating interventions that do not meet their needs or expectations.
- Involving CYP and their families provides crucial insights for developing effective and acceptable health technologies.
Purpose of the Study:
- To underscore the necessity of involving CYP in health technology design and development.
- To elucidate methods for facilitating meaningful participation of CYP in health technology creation.
- To provide evidence and case studies demonstrating the positive impact of CYP involvement.
Main Methods:
- Review of patient and public involvement and engagement strategies.
- Exploration of co-design and experience-based co-design methodologies.
- Analysis of case studies showcasing real-world application and outcomes.
Main Results:
- Meaningful involvement of CYP ensures health technologies are usable, acceptable, and contextually appropriate.
- Various participatory methods, including co-design, can be employed individually or in combination.
- Case studies demonstrate successful integration of CYP perspectives leading to impactful solutions.
Conclusions:
- Involving children and young people is essential for developing effective health technologies.
- Understanding and applying participatory methods like co-design leads to better health technology outcomes.
- Tailored health technologies developed with CYP input can improve healthcare interventions.
Abstract:
The anatomical, physiological, and developmental changes which arise as children mature through childhood and adolescence support the need to develop new health technologies that meet the specific requirements of children and young people (CYP). Failing to involve CYP during the development of technology increases the risk that the outcome falls short of their expectations and needs, leading to rejection of novel interventions. Through participation in health technology development, CYP and their families can provide context, insight, personal experience and tacit knowledge to ensure that the end-product is usable, acceptable, and can be integrated into its intended environment. A nuanced, balanced understanding of the methods that can be used to facilitate participation will support researchers in choosing an effective approach to involving CYP in health technology development. Methodological approaches include patient and public involvement and engagement, co-design, and experienced based co-design. These methods can be used in isolation or in combination, to facilitate meaningful involvement of CYP and encourage the development of impactful solutions, in consideration of the context, stakeholders, and objectives of the project. We provide the rationale and justification for involving CYP in health technology design and development, an explanation of the methods supporting meaningful involvement, and case studies exemplifying real world application of these methods with positive outputs.
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