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Using co-production to implement patient reported outcome measures in third sector organisations: a mixed methods

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  • 1University of Sheffield, Sheffield, UK. alexis.foster@sheffield.ac.uk.

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|July 19, 2022
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Summary

Implementing Patient Reported Outcome Measures (PROMs) in third sector organisations is challenging. Despite motivation for funding, practical and ideological barriers hinder sustained use, suggesting alternative impact measurement methods may be more feasible.

Keywords:
ImplementingOutcome assessmentPatient-reported outcomesThird sector organisations

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Area of Science:

  • Health Services Research
  • Third Sector Management
  • Outcomes Measurement

Background:

  • Third sector organisations utilize Patient Reported Outcome Measures (PROMs) to demonstrate impact for funding.
  • Implementation of PROMs presents significant challenges for these organisations.
  • Evidence-informed implementation strategies have not been previously evaluated in the third sector context.

Purpose of the Study:

  • To evaluate the effectiveness of an evidence-informed implementation approach for PROMs in third sector organisations.
  • To identify facilitators and barriers to PROM implementation within charities and community groups.

Main Methods:

  • A Community-Based Participatory Research approach was employed.
  • University researchers supported two third sector organisations in implementing PROMs.
  • A mixed-methods evaluation included interviews, focus groups, and analysis of PROMs data (n=313).

Main Results:

  • Organisations faced constraints despite staff involvement in measure selection.
  • Competing priorities, workload, and staff opinions posed implementation challenges.
  • Developing an outcomes-based culture and sustained effort over years were crucial but difficult.

Conclusions:

  • Third sector organisations encounter substantial practical and ideological challenges implementing PROMs, despite funding incentives.
  • The complexity of PROM implementation may lead stakeholders to consider alternative impact measurement methods.
  • Further research into feasible impact measurement for the third sector is warranted.