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Pediatric to Adult Transition Literature: Scoping Review and Rheumatology Research Prioritization Survey Results
Nicole Bitencourt1, Erica Lawson2, John Bridges3
1N. Bitencourt, MD, Department of Pediatrics, Loma Linda University Medical Center, Loma Linda, California, USA; Nicole_Bitencourt@yahoo.com.
The Journal of Rheumatology
|August 1, 2022
Summary
Improving pediatric to adult healthcare transition requires research on identifying vulnerable youth and enhancing self-efficacy. Future studies should address health policy and patient-centered outcomes for better chronic disease management.
Area of Science:
- Medical Research
- Healthcare Policy
- Chronic Disease Management
Background:
- The transition from pediatric to adult healthcare is a critical period for individuals with chronic conditions.
- Growing research highlights the need to optimize this transition for better long-term health outcomes.
- Identifying research gaps is crucial for directing future efforts effectively.
Purpose of the Study:
- To conduct a scoping review of the transition literature in rheumatic and other pediatric-onset chronic diseases.
- To identify gaps in current transition research.
- To provide guidance on research questions addressing identified gaps, prioritizing importance and feasibility.
Main Methods:
- Scoping review of existing transition literature.
- Development and dissemination of a survey to pediatric rheumatologists, young adults with rheumatic diseases, and their caregivers.
- Analysis of literature findings and survey responses to prioritize research questions.
Main Results:
- Transitional care needs are well-documented, but longitudinal validation of transition readiness scales is lacking.
- Multimodal interventions show promise, yet the impact of health policy on transition remains understudied.
- Research on identifying/tracking vulnerable patients and improving self-efficacy/health literacy is highly prioritized.
- Young adults/caregivers prioritized research on work, school, and social function, differing from healthcare teams' priorities.
Conclusions:
- Future research should focus on identifying and supporting young adults at risk for poor transition outcomes.
- Interventions aimed at enhancing self-efficacy and health literacy are crucial.
- Incorporating patient-centered priorities, such as social and functional outcomes, is essential for effective transition care.
- Addressing the impact of health policy on transition requires further investigation.
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