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Mentally retarded parents in the community: identification method and needs assessment survey

B Y Whitman, B Graves, P Accardo

    American Journal of Mental Deficiency
    |May 1, 1987
    PubMed

    Insights

    This study estimates the number of parents with intellectual disabilities receiving agency services. It highlights the need for targeted support to mitigate risks for their children, addressing developmental and neglect concerns.

    Area of Science:

    • Developmental Psychology
    • Public Health
    • Social Work

    Background:

    • Parents with intellectual disabilities represent a growing demographic.
    • Children of these parents face heightened risks for medical, emotional, and cognitive delays, as well as neglect.
    • Accurate population estimates are crucial for developing effective supportive services.

    Purpose of the Study:

    • To estimate the number of parents with intellectual disabilities receiving agency services in a metropolitan area.
    • To identify the specific needs of these families from the parents' perspective.
    • To inform the programming of targeted support services.

    Main Methods:

    • A community-based survey was conducted to determine the population size.
    • Interviews were conducted with a subset of parents and their children.
    • Data collection focused on agency service utilization and perceived needs.

    Main Results:

    • The study provides an estimate of the population size of parents with intellectual disabilities accessing agency services.
    • Survey interviews revealed specific service needs identified by parents.
    • Findings underscore the vulnerability of children in this population.

    Conclusions:

    • Estimating the population size is a critical first step in service provision.
    • Understanding parental perspectives is essential for tailoring effective support programs.
    • Addressing the needs of parents with intellectual disabilities can mitigate risks for their children.

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