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CF RISE: Implementing a Clinic-Based Transition Program.

Anna M Baker1, Kristin A Riekert1, Gregory S Sawicki2

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The CF RISE program improved communication for adolescents with cystic fibrosis (CF) during healthcare transitions. While valuable, time constraints were a key barrier to implementation, though providers anticipate future use.

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Area of Science:

  • Pediatric Healthcare
  • Chronic Disease Management
  • Implementation Science

Background:

  • Adolescents with chronic conditions need increased health management responsibility during healthcare transitions.
  • Guideline-based transition services are crucial but underutilized, particularly for cystic fibrosis (CF) patients.
  • Existing CF transition programs lack widespread dissemination.

Purpose of the Study:

  • To evaluate the implementation process of the CF RISE (Responsibility, Independence, Self-care, Education) program across 10 CF centers.
  • To gather feedback from CF healthcare providers on the program's initial implementation and perceived value.
  • To identify facilitators and barriers to the adoption and sustainability of the CF RISE program.

Main Methods:

  • A process evaluation using the Consolidated Framework of Implementation Research (CFIR).
  • Online surveys completed by 23/25 (95%) CF healthcare providers at 10 sites 6 months post-program initiation.
  • Qualitative coding of open-ended survey responses to identify implementation themes.

Main Results:

  • CF RISE positively impacted family communication and assessments, with all providers deeming it valuable (60% very/extremely valuable).
  • Primary implementation barriers included time (96%) and visit planning (61%).
  • High provider confidence in sustainability (95%) and future use (91%) was reported, alongside appreciation for program flexibility.

Conclusions:

  • CF healthcare providers positively evaluated the CF RISE program during initial implementation.
  • Feedback highlights facilitators like flexibility and barriers like time, informing future wider implementation strategies.
  • Further evaluation of CF RISE's impact on transition outcomes is critical.