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Updated: Sep 2, 2025

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Nothing about us, without us: is for us.

Aamnah Rahman1, Salma Nawaz2, Eisha Khan2

  • 1Born in Bradford - Bradford Institute for Health Research, Bradford, UK. Aamnah.Rahman@bthft.nhs.uk.

Research Involvement and Engagement
|August 4, 2022
PubMed
Summary
This summary is machine-generated.

Public participation and involvement (PPIE) and coproduction in health research are vital for enhancing policy and delivery. Embedding these principles fosters community ownership and research credibility, ensuring community voices are central to the research process.

Keywords:
4MAT models and co-productionEngagementInvolvementLay participationParticipationPublic

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Area of Science:

  • Health Research Methodologies
  • Community-Based Participatory Research

Background:

  • Public Participation Involvement Engagement (PPIE) and coproduction are increasingly encouraged in health research.
  • Challenges include a lack of clear definitions, interchangeable terminology, and limited guidance on best practices.
  • The Born in Bradford (BiB) programme utilizes diverse, multi-ethnic, and socially diverse populations in longitudinal birth cohort studies.

Purpose of the Study:

  • To outline the approach to PPIE and coproduction methodologies used in the Born in Bradford (BiB) research programme.
  • To demonstrate how collaborative work with diverse communities overcomes challenges and achieves successful PPIE.
  • To highlight the value of PPIE and coproduction in enhancing health research and community engagement.

Main Methods:

  • Describing the methodologies employed for collaborative work with diverse cohort populations.
  • Providing examples of successful community engagement and participation from recent years.
  • Discussing the integration of PPIE and coproduction into research protocols and practices.

Main Results:

  • Stakeholder involvement and realization of their impact on policy design and delivery are key to successful PPIE and coproduction.
  • Community participation enhances the credibility and relevance of health research.

Conclusions:

  • Involving participants and communities in research creates more credible outcomes through equal partnerships.
  • Full process involvement leads to community ownership of research, embodying the principle of 'nothing about us, without us'.