Patient perspectives on major lower limb amputation - A qualitative systematic review

Area of Science:

• Qualitative research
• Patient-centered care
• Vascular disease outcomes

Background:

• Major lower limb amputation significantly impacts patient quality of life.
• Current care models prioritize evidence-based recommendations over patient preferences.
• Limited understanding of patient perspectives in amputation care.

Purpose of the Study:

• To systematically review and synthesize patients' perspectives on major lower limb amputation due to vascular disease.
• To explore patient experiences from the decision-making process through long-term adaptation.
• To highlight the underrepresented patient voice in amputation rehabilitation.

Main Methods:

• Systematic review of qualitative studies.
• Searched major databases: PubMed, CINAHL, Embase, PsycINFO.
• Thematic synthesis of 13 included studies (2010-2021).

Main Results:

• Six key themes emerged: confronting amputation, emotional responses, lifestyle concerns, body changes, social interactions, and healthcare needs.
• Included both prosthetic and non-prosthetic users.
• Identified significant patient worries encompassing physical, mental, practical, and financial aspects.

Conclusions:

• Patients experience multifaceted challenges post-amputation, including emotional distress and functional limitations.
• Empathy and comprehensive support are vital for managing uncertainty and fostering adjustment.
• Addressing patient needs is essential for adapting to a 'new normality' and improving outcomes.