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What Du Bois and I Know About Dignity of Risk
Perspectives in Biology and Medicine
|August 8, 2022
Summary
This study explores the dignity of risk for people with disabilities, using personal narratives to examine bioethical concepts like autonomy and uncertainty. It advocates for humility in medical predictions, especially for those with disabilities.
Area of Science:
- Bioethics
- Disability Studies
- Medical Humanities
Background:
- Robert Perske's "The Dignity of Risk" (1972) highlighted key bioethical concepts.
- Personal narratives offer unique insights into complex ethical issues.
- Understanding disability requires exploring dignity, risk, and autonomy.
Purpose of the Study:
- To explicate bioethical concepts through personal narratives.
- To integrate humanities and social science perspectives into the "dignity of risk" framework.
- To advocate for humility in medical science's predictive narratives for patients with disabilities.
Main Methods:
- Analysis of interwoven personal narratives.
- Application of concepts from bioethics, humanities, and social sciences.
- Drawing on narratives from Mark (Perske's character), W. E. B. Du Bois, Frantz Fanon, and the author.
Main Results:
- Personal narratives illuminate the meaning-making work of language and story.
- Stigma management and dignity maintenance are crucial social science concepts relevant to risk and disability.
- The study deepens the understanding of dignity, risk, paradox, disability, autonomy, uncertainty, diagnosis, and prognosis.
Conclusions:
- Personal narratives serve as a vital method for knowledge creation in bioethics.
- A call for humility in medical science's predictive narratives is essential, particularly for individuals with disabilities.
- Integrating diverse narratives enriches bioethical discourse and practice.
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