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Updated: Sep 2, 2025

Adapted Resistance Training Improves Strength in Eight Weeks in Individuals with Multiple Sclerosis
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Transition program: Initial implementation with adults with neuromuscular conditions.

Eduardo Del Rosario1, Adella Bodden1, Debra A Sala1

  • 1Hassenfeld Children's Hospital of New York at NYU Langone Health, NYU Langone Orthopedic Hospital, New York, NY, USA.

Journal of Pediatric Nursing
|August 8, 2022
PubMed
Summary

Healthcare transition for adults with neuromuscular conditions is challenging. Only 58% completed adult provider visits, highlighting the need for tailored services and provider availability.

Keywords:
Adult-based healthcareCerebral palsyInterdisciplinaryNeuromuscularPediatric-based healthcareTransition

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Area of Science:

  • Neurology
  • Rehabilitation Medicine
  • Healthcare Management

Background:

  • Adult patients with neuromuscular conditions face unique medical and psychosocial needs.
  • Transitioning from pediatric to adult healthcare services presents significant challenges.

Purpose of the Study:

  • To assess the needs of adult patients with neuromuscular conditions.
  • To evaluate the effectiveness of a healthcare transition program.

Main Methods:

  • 46 patients with neuromuscular conditions were evaluated in a transition clinic.
  • Follow-up interviews at 22 months assessed referrals for core, medical, and rehabilitation services.

Main Results:

  • 100% of patients needed core services; 83% had an adult primary care provider.
  • Referrals were high for physiatry (62%), vocational training (100%), and occupational therapy (88%).
  • Only 58% of participants completed visits with referred adult providers.

Conclusions:

  • Healthcare transition for neuromuscular patients remains difficult.
  • Services must be tailored to patient needs and adult provider availability.