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Specialized Outpatient Palliative Care—Clinical Course and Predictors for Living at Home Until Death
Johannes Just1, Marie-Therese Schmitz, Ulrich Grabenhorst
1Institute of General Practice and Interprofessional Care, Witten/Herdecke University, Witten, Germany; Institute of Medical Biometry, Informatics and Epidemiology (IMBIE), University of Bonn, Bonn, Germany; Verbund der SAPV-Teams in Nordrhein e. V., Viersen, Germany.
Background:
Specialized outpatient palliative care (SOPC) is an important component of the palliative medicine care concept in Germany. Its purpose is to improve the out-of-hospital care of patients who cannot be adequately cared for by their primary care physicians and in the setting of general outpatient palliative care (GOPC).
Methods:
In this retrospective analysis of anonymized routine treatment data, we analyzed the characteristics of SOPC patients overall and with specific diseases, and depicted them both numerically and graphically. We also carried out a regression analysis of the factors affecting whether or not patients will be able to die in a home environment.
Results:
The analysis included data from 14 460 patients who were treated by 14 different SOPC teams in the North Rhine area of Germany in 2017 and 2018. The majority of patients who died were able to live at home until death (85.9%); only a small percentage died as inpatients (7.7%). The symptom burden shortly before death was less than at the beginning of treatment. The factors displaying a statistically significant association with dying at home were: more advanced age (aOR 0.96; 95% CI: [0.95; 0.96]), female sex (aOR 0.85; 95% CI: [0.74; 0.98]), and house calls at night (aOR 0.60; 95% CI: [0.51; 0.71]).
Conclusion:
SOPC met its declared objectives of limiting distressing symptoms and enabling patients to live at home until death.
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