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Related Experiment Videos

Thorsten Langer1, Nicole Gusset2, Astrid Pechmann1

  • 1Klinik für Neuropädiatrie und Muskelerkrankungen, Zentrum für Kinder- und Jugendmedizin, Universitätsklinikum Freiburg, Freiburg, Deutschland.

Zeitschrift Fur Evidenz, Fortbildung Und Qualitat Im Gesundheitswesen
|August 29, 2022
PubMed
Summary

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This summary is machine-generated.

Patient and relative involvement in research enhances studies. Two models in pediatric healthcare research, consultative and contributory, show value but require resources and trust for successful patient participation.

Area of Science:

  • Healthcare Research
  • Patient Engagement
  • Pediatric Care

Background:

  • Patient and relative involvement in research is increasingly important.
  • Practical implementation of participatory research remains a challenge for researchers and patients.
  • This study explores two models of patient participation in pediatric healthcare research.

Purpose of the Study:

  • To report on experiences with two distinct forms of patient participation in pediatric healthcare research.
  • To identify key considerations for realizing and organizing participatory research.
  • To evaluate the value and challenges of different participation models.

Main Methods:

  • Described two models of patient participation: consultative role in a specific project and a contributory role in a patient advisory board.
Keywords:
Health care researchKinder- und JugendmedizinParticipatory researchPartizipative ForschungPatient participationPatientenbeteiligungPediatricsVersorgungsforschung

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  • Focused on pediatric healthcare research at a university hospital.
  • Examined essential questions: patient selection, participation extent, and impact evaluation.

    • Main Results:

    • Both consultative and contributory participation models add value to research from all stakeholders' perspectives.
    • Project-based participation offers a defined scope, while advisory boards allow for broader research agenda development.
    • Successful implementation requires adequate resources (time, funding) and strong, trusting collaboration.

    Conclusions:

    • Patient participation in research, in various forms, is beneficial for healthcare research.
    • Different models offer unique opportunities and challenges, requiring careful planning and resource allocation.
    • Trusting collaboration and sufficient resources are crucial for effective patient and relative involvement in research.