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Using Visual and Narrative Methods to Achieve Fair Process in Clinical Care

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Demonstrating Equity Through the Convening of Expert Panels.

Tina J Kauh¹, Maryam Khojasteh¹

¹Robert Wood Johnson Foundation, Princeton, New Jersey, USA.

|September 7, 2022

Summary

Addressing data gaps in public health is crucial for improving health equity. Expert panels identified system and policy solutions to tackle inequities in demographic data collection and use.

Area of Science:

Public Health
Health Equity
Health Data Systems

Background:

Data gaps in demographic characteristics like race, ethnicity, sex, sexual orientation, gender identity, and disability status hinder public health efforts.
Existing health data systems often perpetuate and exacerbate health disparities.
Addressing these data inequities is essential for achieving health equity.

Purpose of the Study:

To identify system and policy levers for addressing data inequities in public health.
To inform deliberations of the National Commission to Transform Public Health Data Systems.
To challenge orthodoxies in research and philanthropy that perpetuate health disparities.

Main Methods:

Convening five expert panels to discuss and identify solutions for data gaps.

Keywords:

data systems equity health

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Reflecting on the experiences and observations of Robert Wood Johnson Foundation (RWJF) program officers who worked with the panels.

Analyzing the process of selecting and convening expert panels to ensure equity.

Main Results:

Key themes emerged across the expert panels regarding strategies to address data gaps.
The convening process itself demonstrated principles of equity.
RWJF's approach aimed to challenge established norms in research and philanthropy.

Conclusions:

System and policy changes are needed to address population-specific data gaps.
Promoting equity in data collection and use is fundamental to improving public health outcomes.
Transforming public health data systems requires a commitment to challenging existing disparities.