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Archival Research01:40

Archival Research

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Some researchers gain access to large amounts of data without interacting with a single research participant. Instead, they use existing records to answer various research questions. This type of research approach is known as archival research. Archival research relies on looking at past records or data sets to look for interesting patterns or relationships. For example, a researcher might access the academic records of all individuals who enrolled in college within the past ten years and...
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Traumatic Memory01:20

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Emotionally traumatic events often lead to memories that are exceptionally vivid and enduring, sometimes persisting with remarkable clarity throughout an individual's life. A classic example of this phenomenon is a person who survives a car accident. Even years later, they may recall every detail of the event with startling accuracy — the screeching of the tires, the jarring impact, and the acrid smell of burning rubber. Such vividness contrasts sharply with how an individual...
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The American Nurses Association (ANA) created and implemented the first nationally accepted Code of Ethics for Nurses with Interpretive Statements. The Code of Ethics is a living document regularly updated by the ANA and establishes an ethical standard that is non-negotiable for nurses in all roles and settings.
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Open science and data sharing in trauma research: Developing a trauma-informed protocol for archiving sensitive

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Summary

Engaging trauma survivors in the informed consent process for data sharing is feasible and empowering. Participants want control over their sensitive narratives to ensure privacy and safety during data archiving.

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Area of Science:

  • Psychology
  • Sociology
  • Open Science

Background:

  • Open science initiatives promote data sharing, but qualitative trauma data poses unique challenges for de-identification.
  • Existing literature lacks guidance on informed consent for data sharing in trauma research.
  • Qualitative trauma research requires careful consideration of participant safety, privacy, and confidentiality.

Purpose of the Study:

  • To develop and evaluate an informed consent protocol for qualitative data sharing in trauma research.
  • To explore participant perspectives on data de-identification and archiving procedures.
  • To empower trauma survivors by involving them in decisions about their data.

Main Methods:

  • Conducted qualitative interviews with 32 adult sexual assault survivors.
  • Explored informed consent procedures for data sharing.
  • Assessed participant desire for input on data sharing and redaction.

Main Results:

  • No participants declined due to the data archiving mandate.
  • Survivors desired input on data sharing to maintain control over their narratives.
  • Participants sought to protect their privacy, confidentiality, and safety through data control.
  • No participants chose to redact substantive data from their transcripts.

Conclusions:

  • Involving trauma survivors in the data archiving process is a practical and empowering approach.
  • Participant involvement in data sharing decisions enhances their sense of control and safety.
  • This protocol facilitates ethical data sharing in sensitive qualitative research.