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Compositional associations between movement-related behaviours and functional outcomes post-stroke.

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Stroke survivors partner in research: a case example of collaborative processes.

Alyson Kwok1,2,3, Deacon Cheung4, Maysyn Gordon4

  • 1Faculty of Rehabilitation Medicine, University of Alberta, 8204 112th Street NW, Edmonton, AB, T6G 2G4, Canada. alyson.kwok@albertahealthservices.ca.

Research Involvement and Engagement
|September 10, 2022
PubMed
Summary

Engaging stroke survivors as patient partners in research, even with communication challenges, enriches study design and findings. This case example highlights successful collaboration from study design to dissemination.

Keywords:
CVAPatient partnerPatient-oriented researchRehabilitationStroke

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Area of Science:

  • Patient-centered research methodologies.
  • Qualitative research in health sciences.
  • Stroke rehabilitation and patient engagement.

Background:

  • The Canadian Strategy for Patient-Oriented Research (SPOR) promotes patient involvement in research.
  • Engaging stroke survivors presents unique challenges due to potential cognitive, communication, or mobility impairments.
  • This paper details a case example of collaborative research with three post-stroke individuals, including one with aphasia.

Discussion:

  • The SPOR Patient Engagement Framework guided the integration of patient partners.
  • Patient partners actively contributed to study design, interview question development, and thematic analysis.
  • Effective teamwork was facilitated by valuing lived experience, employing communication strategies, and fostering relationships.

Key Insights:

  • Stroke survivors, including those with aphasia, can be valuable research team members.
  • Meaningful patient engagement requires tailored support and communication strategies.
  • Lived experience knowledge is crucial for robust qualitative research design and execution.

Outlook:

  • Further research should explore best practices for engaging diverse patient populations in health research.
  • Developing adaptable frameworks for patient engagement can enhance inclusivity in research.
  • Successful patient-partnered research can lead to more relevant and impactful health outcomes.