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Pediatric palliative care for children with cancer: a concept analysis using Rodgers' evolutionary approach
Parvaneh Vasli1, Maryam Karami2, Hanieh AsadiParvar-Masouleh3
1Department of Community Health Nursing, School of Nursing and Midwifery, Shahid Beheshti University of Medical Sciences, Vali Asr Ave., Ayatollah Hashemi Rafsanjani Cross Road, Tehran, Iran. p-vasli@sbmu.ac.ir.
Insights
Pediatric palliative care (PPC) for children with cancer is holistic, patient- and family-centered, continuous, and interdisciplinary. Effective implementation requires trained providers, adequate resources, and clear understanding of its benefits for quality of life and symptom management.
Area of Science:
- Pediatric Oncology
- Palliative Care Medicine
- Concept Analysis
Background:
- Pediatric palliative care (PPC) is crucial for children with serious illnesses like cancer, yet often perceived as complex.
- This study aimed to clarify the concept of PPC specifically for pediatric cancer patients.
Purpose of the Study:
- To analyze the concept of pediatric palliative care (PPC) for children with cancer.
- To define the core characteristics, antecedents, and consequences of PPC in this population.
Main Methods:
- A literature search was conducted for articles on PPC in pediatric cancer from 2010-2021.
- Rodgers' evolutionary concept analysis method was applied to 19 selected full-text articles.
Main Results:
- PPC for pediatric cancer is characterized by holistic, patient- and family-centered, early-start continuous, and interdisciplinary care.
- Antecedents include healthcare provider training, expertise, human resources, and financing.
- Consequences encompass improved quality of life, symptom reduction, and coordinated care and family support.
Conclusions:
- Delivering effective PPC to children with cancer requires a comprehensive understanding of its multifaceted nature.
- Further delineation of factors is necessary for accurate and complete implementation of PPC in pediatric oncology settings.
Background:
Providing access to pediatric palliative care (PPC) for children living with a serious illness, such as cancer, is of critical importance, although this specialized intervention, as a novel concept, still seems vague and complicated. The present study analyzed the concept of PPC for children with cancer.
Methods:
Rodgers' evolutionary method was employed for the concept analysis. Articles on PPC, particularly those for children suffering from cancer, published between 2010 and 2021 were searched in valid academic research databases. The inclusion criteria for the full-text articles were based on the characteristics, antecedents, and consequences of PPC for children with cancer.
Results:
In total, 19 relevant articles were selected and then reviewed and analyzed after applying the inclusion criteria and the final sampling. The analysis of the concept of PPC for children affected with cancer revealed four characteristics, including "PPC as holistic and integrated care", "PPC as patient- and family-centered care", "PPC as early-start continuous care", and "PPC as interdisciplinary and team-based care". Some effective factors could also act as antecedents for this concept, i.e., health care providers' training and expertise as well as human resources and financing. Moreover, improved quality of life, symptom reduction, and coordination between patient care and family support were among the PPC consequences for such children.
Conclusions:
The study results demonstrated that delivering PPC to children with cancer demanded a comprehensive view of its various dimensions. Furthermore, numerous factors need to be delineated for its accurate and complete implementation.
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