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Claire Marchand, Arlette Communier, Aurélie Maurice

    Sante Publique (Vandoeuvre-Les-Nancy, France)
    |September 14, 2022
    PubMed
    Summary
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    People with HIV/hepatitis in vulnerable conditions need better health education for managing multiple chronic conditions. Interventions in Therapeutic Coordination Apartments (ACT) require tailored approaches considering health literacy and patient involvement.

    Area of Science:

    • Public Health
    • Health Education
    • Chronic Disease Management

    Background:

    • Vulnerable populations, including those with HIV and/or hepatitis, often face complex health challenges.
    • Therapeutic Coordination Apartments (ACT) provide support but may have unmet health education needs.
    • Understanding these needs is crucial for effective patient care and support.

    Purpose of the Study:

    • To identify specific health education needs of individuals with multiple pathologies, including HIV and/or hepatitis, residing in ACTs.
    • To explore the factors influencing how patients manage their conditions within these supported living environments.
    • To inform the development of targeted health education strategies within ACT settings.

    Main Methods:

    • A qualitative, collaborative research approach involving residents, ACT professionals, and academics.

    Related Experiment Videos

  • Development of interview guides based on existing literature.
  • Data collection through interviews with 36 residents, 9 focus groups with staff, and 9 interviews with ACT managers across 9 ACT sites.

    • Main Results:

    • Identified health education needs encompass managing multiple conditions, specific disease management, daily life adjustments, and understanding disease interconnections.
    • Highlighted specific educational requirements for individuals with HIV and/or hepatitis.
    • Revealed factors influencing patient prioritization of disease management.

    Conclusions:

    • Significant health education needs persist among ACT residents despite ongoing care.
    • Proposals for improved support include more precise needs assessment, specialized training for staff in polypathology therapeutic patient education (TPE), and incorporating patient perspectives.
    • Recommendations emphasize considering health literacy levels in intervention design and delivery.